HHT Education at the National Hemophilia Foundation Annual Conference

This August, Dr. Raj Kasthuri, our HHT Center of Excellence Director from the University of North Carolina Chapel Hill, gave an exceptional HHT presentation (the most attended presentation of the day) at this week’s National Hemophilia Foundation’s Bleeding Disorder Conference: Future Therapies and Surveillance for Blood Disorders. With this year’s conference fully virtual, Dr. Kasthuri was able to reach a global audience of fellow hema-tologists, medical students, researchers and patients to educate on the manifestations of HHT. Dr. Kasthu-ri’s participation in the conference was instrumental in introducing HHT to his Hematology peers who are unfamiliar with HHT. This type of education will open doors for patient access to care from hematologists who now have a basic understanding of HHT, which is vitally important to patients in areas without access to an HHT Center of Excellence.

In addition to presenting HHT information, Dr. Kasthuri shared the promising results of a current pilot program of multidisciplinary care through two of the National Hemophilia Treatment Centers (HTC’s), which was initiated between the Centers for Disease Control and Prevention (CDC), the American Thrombosis and Hemostasis Network (ATHN) and Cure HHT. Under Dr. Kasthuri’s leadership, this program could potentially assist in extending treatment of patients with HHT at national HTC’s. Hats off to Dr. Kasthuri for being one of our top HHT champions!

Dr. Kasthuri’s full presentation will be available on the
National Hemophilia Foundation’s website after August 31, 2020.