Leadership & Board
Foundation Staff
Chief Operating Officer
Chief Administrative Officer
Senior Director, National Healthcare Programs
National HHT Coordinating Center Grant Manager
Director, Research Programs and Grants
Grants & Finance Specialist
Bookkeeper
Operations & Business Systems Associate
Clinical Care Network and Research Grant Consultant
Senior Manager, Development & Community Engagement
Senior Manager, Brand Marketing
Community Manager
Global Center of Excellence and Outreach Director
Research Coordinator
Manager, Community Events & Education
Senior Clinical Research Advisor
Vice Chair, North American Scientific and Medical Advisory Council
Vice Chair, Center of Excellence Executive Committee
Chair, North American Scientific and Medical Advisory Council
Board of Trustees
Chair
Scotts Valley, CA
Vice Chair
Venice, CA
Treasurer
Bedminster, NJ
Secretary
Newton, MA
Trustee
St. Louis, MO
Trustee
Asheville, NC
Trustee
Glendale, WI
Trustee
Chapel Hill, NC
Trustee
Cork, Ireland
Trustee
Lehi, UT
Consulting Trustee
Bluebell, PA
Trustee Emeritus
Somerset, NJ
Global Research and Medical Advisory Board
Chair
Pulmonology
Utrecht
Vice Chair
Basic Science
University of California, San Francisco
Chair Elect
Hematology
Massachusetts General Hospital
Vice Chair Elect
Basic Science
Leiden University
Basic Science
INSERM Grenoble
Scientist
Centro Investigaciones Biologicas, CSIC
Pulmonology
Washington University School of Medicine
Pulmonology
Dotter Interventional Institute, Oregon Health and Science University
Interventional Radiology
University of California, San Francisco
Genetics
Lyon, France
Pulmonology
University of Toronto
Otolaryngology
University of Marburg, Germany
Pulmonology
Augusta University
Neuroradiology
University of California, San Francisco
Vascular Biology
University of California, Irvine
Hematology
University of North Carolina, Chapel Hill
Otolaryngology
Odense University
Neuro-Interventional Radiology
Osaka City General Hospital
Basic Science
Feinstein Institute Northwell Health
Basic Science, Genetics
Duke University
Genetic Counselor
University of Utah
Basic Science
Tulane University
Basic Science
Barrow Neurological Institute
Basic Science
Heidelberg University
Interventional Radiology
Yale University
Cardiology, PAH
St. Antonius Hospital
Pediatrics
Toronto Sick Kids Hospital
Basic Science
University of Pittsburgh
Internal Medicine
Hospital Italiano
Genetics
ARUP Labs
Basic Science
Maine Medical Center Research Institute
Pediatrics
St. Louis Children’s Hospital
Genetics
Royal Melbourne
Cardiology
Yale University