Cure HHT and Diagonal Therapeutics are teaming up to uncover the hidden challenges and daily realities of living with HHT.
If you or someone you know is living with HHT, this remote, observational study offers a unique chance to help researchers see what life with HHT truly looks like. Your involvement will help uncover how HHT affects daily life, healthcare needs, and overall quality of life.
MAKE AN IMPACT: This study is designed to capture the real impact of HHT.
Your insights will help researchers identify key goals for future trials, goals that can lead to treatments focused on what truly matters to the HHT community.
Why Join?
Earn Up to $1,300: Receive compensation for your time and valuable input.
Contribute to Understanding HHT: document real-world experiences of HHT to guide the future of HHT research and treatment strategies.
Highlight Your Needs: Help shed light on the challenges faced by HHT patients like YOU, paving the way for improved care practices.
Your Daily Experience, As It Is: This study is all about your everyday journey, your experiences, your story. You’re the expert, and your voice helps shape what really matters in HHT care.
What to Expect:
This is an observational study – it involves answering questions and logging your nosebleeds, healthcare visits, and lifestyle over the course of a year.
There’s no treatment involved, and your participation is simply to help researchers better understand the full picture of living with HHT.
This remote study lets you easily contribute right from your phone and be compensated for you time.
HHT Impact explores the lives of people with HHT to gain a deeper understanding of:
- The Impact of Bleeds
- Healthcare Needs
- Everyday Challenges of HHT
Who can Join:
- 18+ living in the United States
- Definite diagnosis of HHT with moderate to severe nose bleeds
- Access to the internet
- Can commit to a year-long study documenting your HHT experience
Help us see HHT through your eyes!
Share your journey and help impact the future of HHT research.
Interested? Click the button below to see if you qualify.
