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Nosebleed Management in HHT (recorded)

Dr. David Poetker, an Otolaryngologist at the Froedtert & Medical College of Wisconsin HHT Center of Excellence, discusses the full-spectrum of nosebleed therapies including nasal packing, bi-polar cautery, coblation and surgical procedures. HHT-related nosebleeds can impact quality of life so it is important to understand the various treatment options since no one treatment works for…

What Does This All Mean to Me and My Family? (recorded)

Dr. Justin McWilliams, Co-Director of the HHT Center of Excellence at the University of California Los Angeles, highlights the recommended screening and treatment guidelines that should follow an HHT diagnosis. Dr. McWilliams discusses the need for precautionary measures, like prophylactic antibiotics and IV filters, as well as links between HHT and other medical conditions. In…

Pathophysiology of HHT and Advances in HHT Research (recorded)

Dr. Christopher Hughes, Chairman of Cure HHT’s Global Research and Medical Advisory Board, discusses the basic science behind HHT as well as six new research projects from the Cure HHT Young Scholar Grant program. The presentation is followed by a Q&A discussion with webinar attendees.

Cardiac and Liver Manifestations (recorded)

Dr. Kevin Whitehead, Co-Director at the University of Utah HHT Center of Excellence, covers various ways that the heart can be affected in HHT, including heart failure due to liver AVMs and pulmonary hypertension. The presentation is followed by a Q&A discussion with webinar attendees.

Brain Vascular Malformations in HHT: Knowledge is the Key (recorded)

Dr. Marie Faughnan, Director of the HHT Center of Excellence at the University of Toronto / St. Michael’s Hospital, Scientific Research Director for Cure HHT, reviews the management and treatment protocols for brain AVMs in HHT patients. Dr. Faughnan also discusses the initial findings of NIH Brain Vascular Malformation Consortium research study. The presentation is followed…

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