Dr. Mollie Meek, Director at the University of Arkansas Medical Sciences HHT Center of Excellence, provides an introduction to the basic clinical features of HHT for adults and children, including the Curacao diagnostic criteria, general screening protocols at an HHT Center, and an overview of medical terminology used when treating HHT. The presentation is followed by…

Cure HHT Legislative Advisor Mark Vieth takes us for a behind-the-scene look at how Cure HHT can impact federal research funding and awareness of this disease. HHT has received significantly less federal funding than many other rare diseases. This needs to change! It is time to convert the voice of the HHT community into increased…

  Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard from 23 countries. They reviewed the 12th HHT International Conference Executive Summary of basic science and clinical science talks and workshops along with the conference abstracts all of which were published in Angiogenesis (Fall…

Dr. James Gossage, Director of the Pulmonary Vascular Disease Program and HHT Center of Excellence at Augusta University, and Dr. Sara Palmer, psychologist and part-time assistant professor in the Department of Physical Medicine and Rehabilitation at Johns Hopkins University School of Medicine, discuss in-depth how to advocate for your health. This webinar is for young adults living…

Lynne Sekarski, MSN, RN, CPN, nurse coordinator for the St. Louis Children’s Hospital HHT Center of Excellence at Washington University, provides an in-depth conversation about HHT and children. Children with HHT are typically asymptomatic but this does not mean they didn’t inherit the disease. Gain insight from a pediatric perspective about screening and treatment protocols, management of…