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Entering the Therapeutics Age: A New Era for HHT Treatment (Recorded)

Lately, there’s been an exciting wave of news about HHT therapies. Several clinical trials are now underway, biotech companies are investing heavily in HHT research, and new treatments are closer than ever to becoming reality. We’re entering this new “therapeutics era” for HHT, and Dr. Hanny Al-Samkari, Director of the Massachusetts General Hospital HHT CoE,…

A New Option for Chronic Nosebleeds: Is Sclerotherapy Right for You? (Recorded)

Join us to learn about sclerotherapy, an innovative treatment offering hope to HHT patients suffering from chronic nosebleeds. Dr. Jay Piccirillo, ENT at Washington University, explains how this minimally invasive therapy works, its benefits, who qualifies, where patients can receive this treatment, and what to expect.

Stopping the Flow: A Comprehensive Guide to HHT Nosebleed Management (Recorded)

Join us as Dr. Jeb Justice, co-director of the HHT Center of Excellence at University of Florida, goes over a variety of ways you can help manage your HHT-related nosebleeding. Treatments available for patients are rapidly evolving. Learn about all the options from therapeutics to surgical interventions and more – available to you. Dr. Justice…

How to Be an HHT Changemaker Part 2: Educate Your Local Provider (Recorded)

YOU asked us to educate the medical community on HHT. Learn more about our new HHT Continuing Education Credit Online Platform in Part 2 of our “How to Be an HHT Changemaker” Series. Melissa Dickey, RN, MSN FNP, teaches you how to get your local providers signed up for our free HHT education program.

How to Be an HHT Changemaker Part 1: Drive Research (Recorded)

Participating in research is the ultimate way to be an HHT changemaker. We have two exciting new projects to share with you, HHT Connect and the Cure HHT BioBank. Courtney Kasturiarachi, MPH, walks you through everything you need to know about HHT Connect, The Global Patient Registry. Hear more about what a patient registry is,…

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