The ESS was developed through a Cure HHT research grant. This online tool is to calculate the severity score of nosebleeds. Want to know if your nosebleed treatment is effective? Treatment of nosebleeds (epistaxis) should be determined by a care provider with experience in treating HHT patients. Share this tool and your ESS with your…

Track your nosebleeds with this journal developed by an ENT specializing in HHT. It is important to give your doctor an accurate picture of your nosebleed history. This epistaxis journal includes everything your ENT, as well as other physicians, needs to know to make appropriate treatment decisions.

Are you disabled? Learn the difference between two federal government assistance programs, Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI), and the specific sections of the SSA official listing that includes organs impacted by HHT. Links are also available for SSDI application and and SSA Disability Starter Kit.

Simple instructions to follow if your health insurance claim has been denied.

Contact your local insurance regulator if your insurance company isn’t treating you fairly. The State Insurance Regulator offices enforce laws and regulations for each type of insurance. Many of these offices can also provide you with information to help you make informed insurance-buying decisions.