My HHT Tracker app allows you to educate yourself about HHT and track your health at no cost to the user. The app is available on Apple iOS only. Use the app to store your HHT health data, organize your medical tests and results, share your data with your healthcare team, monitor how you are…

By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of…

A simple, visual explanation of HHT and how the disease can impact the body. You can use this resource to educate yourself, family members, school nurses and teachers. This graphic was designed by the HHT Center at Washington University and was published in their internal Outlook communication.

Your Guide to HHT Medical Terminology. HHT impacts multiple organs and is defined by a variety of medical terms. To advocate for your healthcare you need to understand the terminology being used to explain your screening, treatment and management options. This glossary will transform medical terminology into language you and your family can understand.

The ESS was developed through a Cure HHT research grant. This online tool is to calculate the severity score of nosebleeds. Want to know if your nosebleed treatment is effective? Treatment of nosebleeds (epistaxis) should be determined by a care provider with experience in treating HHT patients. Share this tool and your ESS with your…