Iron deficiency is a common and important manifestation of HHT. Lack of iron makes it harder to produce red blood cells (RBCs), has symptoms similar to anemia, and makes anemia more likely to occur with active bleeding as the body will not have the necessary iron available to replace the lost RBCs. Approximately 50% of…

We’ve taken the International HHT Guidelines and distilled them into easily readable factsheets and checklists that can be filled out and given to your physicians. The result is a beautifully bound and curated 48-page publication, A Comprehensive Guide to Managing Your HHT. Order a free complimentary booklet through our Join Us form, or click the…

Review information related to COVID Vaccines for People with HHT including vaccine comparison chart, common myths, and special considerations for those with HHT.

Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals of Internal Medicine in 2020.

Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals of Internal Medicine in 2020.