Your doctor may refer you to a genetic counselor to discuss your risk for HHT and your genetic testing options. The role of a genetic counselor is to help you better understand your genetic risks and the tests available to you. Most HHT Centers of Excellence will have a genetic counselor but if they don’t…

Completing your family tree is a critical first step in identifying family members who may have inherited HHT. Provided by the Surgeon General, “My Family Health Portrait” is an internet-based tool that makes it easy for you to record your family health history.  It assembles your information and makes a “pedigree” family tree that you…

Looking for a simple explanation of HHT to share with your children and those who care for them everyday? This pamphlet is to assist children who may be uncertain or anxious about the symptoms of HHT experienced by themselves and/or their parents. The simple explanation of HHT and malformed blood vessels is also perfect to…