Effect of Bevacizumab Nasal Spray on Epistaxis Duration in HHT. A Randomized Clinical Trial

JAMA. Authors: Sophie Dupuis-Girod, PhD, Alexis Ambrun, MD, and Evelyne Decullier, PhD. This article is available for public use and does not require purchase….

ABSTRACT: Effect of Topical Intranasal Therapy on Epistaxis Frequency in Patients with HHT. A Randomized Clinical Trial.

JAMA. This article is available for public use and does not require purchase. Click to view the full article.

Pumping Iron in HHT (recorded)

The multi-disciplinary team of experts from the HHT Center of Excellence at the University of Toronto/St. Michael’s Hospital discuss the causes and impact of ir…

Pulmonary Hypertension and HHT (recorded)

Dr. Murali Chakinala, Co-Director of the Washington University HHT Center of Excellence, connects the dots between HHT and Pulmonary Hypertension. He discusses…

Let’s Get Personal – HHT in Women (recorded)

Dr. Els de Gussem, Director of the HHT Center of Excellence at Grace Hospital AMC in Winnipeg, Canada, takes an in-depth look at the effects of HHT on the chang…

Treatment of Hereditary Hemorrhagic Telangiectasia-Related Epistaxis

Otolaryngologic Clinics of North America. Authors: Nathan B. Sautter and Timothy L. Smith. This article can be purchased directly from the publisher. Click to v…

HHT Genetic Testing Services – Information for Clinicians

HHT Facts at a Glance

The most critical HHT information highlighted on a single sheet. HHT Quick Facts provides you and your physician critical information about organs typically inv…

Diagnosis and Misdiagnosis of HHT

HHT signs and symptoms are not recognized and often mistaken for other conditions. Misdiagnosis and delay in diagnosis pose the greatest risk to a person with H…

My Partner Has HHT

When your partner or spouse has HHT, you are also affected by the disease. Learn how your partner is affected by HHT, what you can do to help them, how to prepa…

HHT & Depression

The stress of living with a genetic disease can lead to depression. Learn how to recognize the signs and symptoms.

Aging Patients with HHT

Aging can create health care challenges. With the proper care, aging patients with HHT can maintain a high quality of life. Learn how to manage new complication…

HHT & Stroke

Strokes are very common in the general population and can be prevented in HHT. Strokes don’t just affect the elderly with HHT, they can affect children and youn…

Living with HHT

Living with HHT can be stressful at times, and most people can manage it. HHT does not have to define your life. Follow these six simple steps and start living…

Family Ties: Genetic Testing

As a hereditary disease, HHT has the potential to devastate families if not identified and treated. Some of the most easily identifiable symptoms of HHT don’t m…

I Have HHT: For Kids

Give your child the tools to overcome HHT challenges. Kids have a natural desire to understand the world around them and HHT can be scary if they don’t understa…

Coping with HHT: For Teens

It’s time to take control of your health. As a teenager, you can begin taking care of your HHT health needs and making decisions about your treatments.

My Child Has HHT: Screening Guidelines

Screening your child for HHT is an essential part of their preventive health care. HHT runs in families and each child born has a 50% chance of inheriting the H…

Talking to Your Physician about HHT

It’s important to talk to your doctor about your HHT. Use this fact sheet as a resource when you and your doctor discuss your HHT treatment and management plan.

Know the Signs & Symptoms of HHT

Recognizing HHT symptoms is half the battle. Knowing the signs and symptoms of HHT can help save a life.

Advice For People Newly Diagnosed With HHT

You’ve just been diagnosed with HHT, now what? This fact sheet will help guide you through your recent diagnosis.

De Novo Arteriovenous Malformation in a Patient with HHT

Journal of Neurosurgery. Pediatrics. Authors: Yusuke Shimoda, Toshiya Osanai, Naoki Nakayama, Satoshi Ushikoshi, Masaaki Hokari, Hideo Shichinohe, Takeo Abumiya…

Nosebleed Management in HHT (recorded)

Dr. David Poetker, an Otolaryngologist at the Froedtert & Medical College of Wisconsin HHT Center of Excellence, discusses the full-spectrum of nosebleed th…

Cerebrovascular Manifestations of Hereditary Hemorrhagic Telangiectasia

Stroke. Authors: Waleed Brinjikji, Vivek N. Iyer, Thomas Sorenson, and Giuseppe Lanzino. This article is available for public use and does not require purchase….

Abstracts – 11th HHT International Scientific Conference (2015)

Angiogenesis. This article can be purchased directly from the publisher. Click to view the article description and purchase options.

Executive Summary – 11th HHT International Scientific Conference (2015)

Angiogenesis. Authors: Helen Arthur, Urban Geisthoff, James R. Gossage, Christopher C. W. Hughes, Pascal Lacombe, Mary E. Meek, Paul Oh, Beth L Roman, Scott O….

Lower Risk of Intracranial Arteriovenous Malformation Hemorrhage in Patients with HHT

Neurosurgery. Authors: Wuyang Yang, Ann Liu, Alice L. Hung, Maria Braileanu, Joanna Y. Wang, Justin M. Caplan, Geoffrey P. Colby, Alexander L. Coon, Rafael J. T…

What Does This All Mean to Me and My Family? (recorded)

Dr. Justin McWilliams, Co-Director of the HHT Center of Excellence at the University of California Los Angeles, highlights the recommended screening and treatme…

Intravenous Bevacizumab for Complications of HHT: A Review of Literature

International Forum of Allergy & Rhinology. Authors: Natalia P. Arizmendez, Luke Rudmik, and David M. Poetker. This article can be purchased directly from the p…

Dose-Response Relationship of Bevacizumab in HHT

Mabs. Authors: Nicolas Azzopardi, Sophie Dupuis-Girod, David Ternant, Anne-Emmanuelle Fargeton, Isabelle Ginon, Frédéric Faure, Evelyne Decullier, Adeline Roux,…