COVID-19: Mind over Matter (recorded)
Connect with Dr. Sara Palmer and Cure HHT staff member, Phyllis Loveland, Operations and Communications Manager, as they help you mentally navigate these challe…
MoreThe Science Behind the 2019 Scientific Conference (recorded)
Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference i…
MoreLiving with HHT (recorded)
Carrie Fiasco, Licensed Social Worker with the Cincinnati HHT Center of Excellence, explores the effects of HHT on your mental health and family relationships….
MoreHHT Lung AVMs – A Tangled Web (recorded)
Dr. David Riggans, Interventional Radiologist from the Augusta Vascular Center at the Augusta University HHT Center presents his talk, “HHT Lung AVMs – A Tangle…
MoreIVF and Preimplantation Genetic Testing for HHT (recorded)
Katie Wusik Healy, LGC, MS, Genetic Counselor at the Cincinnati HHT Center of Excellence, talks about pre-implantation genetic testing (PGT), including what you…
Direct LinkAnemia and Iron Deficiency in HHT (recorded)
Anemia is commonly experienced by those affected with HHT and it frequently results from bleeding of the nose and/or gastrointestinal tract. Dr. Adrienne Hammil…
MoreScreening & Treatment of Brain AVMs in HHT (recorded)
Have you been screened for a brain AVM? If you have a brain AVM, do you know the guidelines for screening and treatment? Arteriovenous Malformations (AVMs) repr…
MoreEating for Health: Dietary Choices that Impact Bleeding
Ever wonder if certain foods trigger nosebleeds? Lisa Mannik, Registered Dietitian in the division of respirology at St. Michael’s Hospital HHT Centre in Toront…
MoreMy HHT Tracker (recorded)
Peter Lauwers, lead member of the Arbormoon Software, Inc. development team, walks through all of the features of this FREE new iOS App for HHT patients. My HHT…
MoreGenetics: Unraveling Your DNA (recorded)
Jaime Jessen, BSc, MSc, CGC, Certified Genetic Counselor and Medical Science Liaison at Impact Genetics and LabCorp, provides an informative presentation on the…
MoreHHT Overview and Screening Guidelines (recorded)
Dr. Mollie Meek, Director at the University of Arkansas Medical Sciences HHT Center of Excellence, provides an introduction to the basic clinical features of HH…
MoreMaking the Connection Between Legislative Advocacy and Federal Funding for HHT (recorded)
Cure HHT Legislative Advisor Mark Vieth takes us for a behind-the-scene look at how Cure HHT can impact federal research funding and awareness of this disease….
MoreHHT Scientific Conference Summaries (recorded)
Drs. Hughes, Faughnan and Andrejecsk provide a first hand synopsis of the HHT science presented in Dubrovnik, Croatia where over 200 voices were heard fr…
More#OnMyOwn (recorded)
Dr. James Gossage, Director of the Pulmonary Vascular Disease Program and HHT Center of Excellence at Augusta University, and Dr. Sara Palmer, psychologist and…
MoreHHT: Caring for the Younger Generation (recorded)
Lynne Sekarski, MSN, RN, CPN, nurse coordinator for the St. Louis Children’s Hospital HHT Center of Excellence at Washington University, provides an in-depth co…
MoreAsk the Doctor
Dr. James Gossage, Director of the Pulmonary Vascular Disease program and the HHT Center of Excellence at Augusta University, answers questions about HHT screen…
MoreWhat’s the Skinny on HHT? (recorded)
Dr. Richard Antaya, Professor of Dermatology and Pediatrics and Director of Pediatric Dermatology at Yale University HHT Center of Excellence, explores what’s h…
MorePumping Iron in HHT (recorded)
The multi-disciplinary team of experts from the HHT Center of Excellence at the University of Toronto/St. Michael’s Hospital discuss the causes and impact of ir…
MorePulmonary Hypertension and HHT (recorded)
Dr. Murali Chakinala, Co-Director of the Washington University HHT Center of Excellence, connects the dots between HHT and Pulmonary Hypertension. He discusses…
MoreLet’s Get Personal – HHT in Women (recorded)
Dr. Els de Gussem, Director of the HHT Center of Excellence at Grace Hospital AMC in Winnipeg, Canada, takes an in-depth look at the effects of HHT on the chang…
MoreNosebleed Management in HHT (recorded)
Dr. David Poetker, an Otolaryngologist at the Froedtert & Medical College of Wisconsin HHT Center of Excellence, discusses the full-spectrum of nosebleed th…
MoreWhat Does This All Mean to Me and My Family? (recorded)
Dr. Justin McWilliams, Co-Director of the HHT Center of Excellence at the University of California Los Angeles, highlights the recommended screening and treatme…
MorePathophysiology of HHT and Advances in HHT Research (recorded)
Dr. Christopher Hughes, Chairman of Cure HHT’s Global Research and Medical Advisory Board, discusses the basic science behind HHT as well as six new research pr…
MoreCardiac and Liver Manifestations (recorded)
Dr. Kevin Whitehead, Co-Director at the University of Utah HHT Center of Excellence, covers various ways that the heart can be affected in HHT, including heart…
MoreBrain Vascular Malformations in HHT: Knowledge is the Key (recorded)
Dr. Marie Faughnan, Director of the HHT Center of Excellence at the University of Toronto / St. Michael’s Hospital, Scientific Research Director for Cure HHT, r…
MoreHHT in Children: Talking to Your School Nurse (recorded)
Leslie Perry, BSN, R.N. discusses helping children manage their HHT in a social and academic environment from the perspective of a school nurse. She offers advi…
Direct LinkIron Deficiency and Anemia in HHT (recorded)
Dr. Raj Kasthuri, Director of the University of North Carolina at Chapel Hill HHT Center of Excellence, discusses the manifestations of iron deficiency and anem…
More