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Rare Disease Awareness Month

Lift Your Heart for HHT

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Help our rare disease mascot take flight!

February is Rare Disease Month and we want to SHOW OUR STRIPES in a big way! During our Lift Your Heart for HHT tribute celebration from February 22 through February 28 (Rare Disease Day®), for each donation made, we’ll honor your loved ones who are either affected by HHT (patients, caregivers and HHT supporters) or who have sadly lost their battle to the disease, by adding a custom balloon to our Zebra friend, Telly's, collection and their name to our tribute wall below.

With our combined love and determination, we can soar above this disease!

Add a personal touch and choose one of the heart balloon colors below to represent your loved one when you donate.
Zebra - Start
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Tribute Wall

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Marianne Clancy

"A true champion for the cause."

Dr. Marcelo Serra

"For his selfless efforts to make educational resources accessible to everyone!"

Barbara J. Bills

Terry H. Thompson, Jr.

"Happy birthday...Wishing you a great and safe year ahead."

Jerome Murphy

"In memory of Jerome Murphy, a wonderful, funny man."

"To the Murphy Family: May the memories of your husband and dad, bring many smiles amd may those memories help you heal."

"In loving memory."

Dr. Marie Faughnan

"Thank you for all you do, Dr. Marie Faughnan!"

To Everyone

"Be you and be your best!" -Robert Schmidt

Dorothy Dvorsky

"Grandma, I miss you every single day. I still can't believe that you're gone. I'm making this tribute in your memory in hopes of finding a cure for Abby and new treatments for me and dad! Love and miss you!"

Dee Woods

"Dee runs HHT Ireland and is a good skin."

Kathleen Brower

"We are all fighting with you Mom!"

 Cure HHT Staff

"To an incredible group of outstanding women who work tirelessly every day for the HHT Community!"

Darin Robins

"Darin lost his battle with HHT but because of the outreach of Cure HHT in an effort to help him, others affected in our community now have a line to the help they so desperately need."

Oscean Letersky

"For recognizing the meaning of selflessness at the mere age of 12! Thanks for shinning a light on Cure HHT and the Rare Disease Community!"

Nella Seymour

"To a true HHT Warrior! Happy 18th Birthday!!"

Willow Thomas

"Wishing you a world of hope and good health!"

HHT Center Directors

"For leading your teams to excellence in the care of HHT."

Marlene Hayes

"Miss you everyday Mom. You had amazing strength. You were such an HHT warrior."

HHT Center Nurses & Coordinators

"For passionately helping HHT patients live their best life!"

Terri Morris

"Keep fighting the good fight!! Happy Birthday, we love you!!"

Barry Steel

           "Love you, keep fighting."

John Sizemore

"In loving memory"

Helen Lent

           "In loving memory"