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Rare Disease Awareness Month

February is Rare Disease Month and we want to SHOW OUR STRIPES in a big way! During our Kisses for a Cure tribute celebration from February 14 through February 28 (Rare Disease Day®), for each donation made (no matter the amount), we’ll honor your loved ones who are either affected by HHT (patients, caregivers and HHT supporters) or who have sadly lost their battle to the disease, by collecting KISSES with the help of our Zebra friend, Telly. Your loved one’s name and special message will be added to our tribute wall below.

Help us KISS HHT goodbye in honor of those you LOVE!

Add a personal touch and choose a heart color below to represent your loved one when you donate.


Dr. Anthony Anzell



HHT Physicians

"Honoring all the dedicated HHT doctors out there. Thank you for your dedication. You save lives!"


"In honor of Liz and all the caregivers out there - the true unsung heroes for HHT patients. Thank you for your strength!"

The Rare Disease Community

"Love to all those suffering from a Rare Disease!"

Nicholas Bowden

"HHT Foundation has your back."

Amy Covel

"To our courageous, beautiful daughter, we love you Amy."

Stephen Kloder

"To my dear son Stephen. May you continue to fight this rare disease & stay well. Love, Mom"

Jack DeVizia

"Love you son!"

JoAnn Paul

"Kissing HHT goodbye is the dream of my honey, JoAnn Paul. Love you, babe!"

Maksym Swain

"Love you baby Mak"

Doro 🙂

"Let’s kiss HHT, not those we love, goodbye! <3 Rybee"

Elmas Muratoglu

"Dear mom, you are always in our hearts. I am yours forever."

Stanley & Maksym

"For my sweet husband Stanley and son Maksym."

Martha Fox

"In loving memory."

Pat Jedlicka

"Miss you every day Mom."

Marilyn Sue Dorn

"In honor of the best mom ever that never let HHT slow her down!! We miss you so much."

Debra Greene

"In loving memory."

Taylor Hallman

"Get Well Soon!"

Terry Thompson, Jr.

"Happy 50th!!! birthday Terry, Hope your day is very special this year and wishing you many more"

John Benson

Jeyren A. Marin Ruiz

"You are brave and strong. Kisses for a Cure."

In support of the HHT Community


Kristi H

"It’s Rare Disease Month Momma! I’m ready to KISS."

Donald Savino

"Miss you brother & best friend. You were special!"

Dr. N Rowan COE JH

"Thank you for literally zapping HHT and keeping it in check. Truly a lifesaver!"

Agnes Hommer

"Love you Mom!"

Chris Parkes

"In honor of my soulmate and badazz newlywed husband. We’re in this together forever my Love! ❤️"

Zebra - Start

WHY A ZEBRA? A horse is a horse of course, but a Zebra is RARE! If you were to hear the sound of hoof-beats behind you, what type of animal would you expect to see? A horse? Let’s face it, it would be a pretty rare occasion to hear hoof-beats and turn around to see a ZEBRA!

This is the issue that medical professionals face every day when they are confronted with a list of symptoms that, at first glance, could be associated with a number of very common diagnoses. The rare disease community is all too familiar with this situation, and especially the HHT community where it takes on average 25 years to get properly diagnosed as…a Zebra! (HHT Rare).

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