February is Rare Disease Month and we want to SHOW OUR STRIPES in a big way! During our Kisses for a Cure tribute celebration from February 14 through February 28 (Rare Disease Day®), for each donation made (no matter the amount), we’ll honor your loved ones who are either affected by HHT (patients, caregivers and HHT supporters) or who have sadly lost their battle to the disease, by collecting KISSES with the help of our Zebra friend, Telly. Your loved one’s name and special message will be added to our tribute wall below.
Help us KISS HHT goodbye in honor of those you LOVE!
WHY A ZEBRA? A horse is a horse of course, but a Zebra is RARE! If you were to hear the sound of hoof-beats behind you, what type of animal would you expect to see? A horse? Let’s face it, it would be a pretty rare occasion to hear hoof-beats and turn around to see a ZEBRA!
This is the issue that medical professionals face every day when they are confronted with a list of symptoms that, at first glance, could be associated with a number of very common diagnoses. The rare disease community is all too familiar with this situation, and especially the HHT community where it takes on average 25 years to get properly diagnosed as…a Zebra! (HHT Rare).