Raise Awareness for HHT

 

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Why is June HHT Awareness Month so important? What does raising Awareness have to do with finding a cure? Everything!

Raising Awareness of HHT with both the public and the medical/scientific community leads to faster diagnosis, early treatment, and increased attention to our causes. Awareness accelerates our mission to find a cure for this disease that touches all of our lives, and the lives of those we love.

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Photo Credit: David Zimand
Photo Credit: David Zimand

“We had a beautiful, perfectly healthy, normal 20-year-old. She was driven. She was in school to become a homicide detective. One minute she was there and the next, she was gone. With no warning. This disease can change your life in a matter of minutes. I will never be the same person that I was. But I will make something beautiful out of this tragedy. It is my goal, my mission. Maybe the reason this happened to us is so that we could do something about it. So we can make sure people know about this disease, to inspire more people to get tested and to get diagnosed for HHT. This doesn’t have to happen to another family.”
– Susan Wallace

Here are some ways you can increase Awareness of HHT

Download a press kit to send to your local newspaper:

You’ll find a news release, daily fact sheets, and an HHT by the Numbers graphic to use in your local outreach.  

You can also share the daily facts on your social media networks with the hash tag #InThisTogether to raise awareness amongst everyone you know.

Talk to your Healthcare Providers about HHT

Download a brochure to give them on your next visit.

Here Are More Ways You Can Build Awareness

Test your Knowledge

Take the HHT IQ Quiz!

After the quiz share your results
and encourage others to test their knowledge.

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Get the Merch!

Buy an Awareness T-Shirt

Take part #InThisTogether with us by purchasing a T-shirt, Wristband or Magnet for HHT Awareness Month and Global Awareness Day. Looking for more Cure HHT Swag, check out the Cure HHT Zazzle Store 

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June 13 - 16th

Annual Scientific Conference


Watch Our Website and Facebook Page for details from the 13th International Scientific Conference in Puerto Rico.

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June 23rd

Global HHT Awareness Day

Mark your calendar for Global HHT Awareness Day, June 23. Share this logo on your social media networks with the hashtag #InThisTogether

#InThisTogether Around the Web