Why is June HHT Awareness Month so important? What does raising Awareness have to do with finding a cure? Everything!
Raising Awareness of HHT with both the public and the medical/scientific community leads to faster diagnosis, early treatment, and increased attention to our causes. Awareness accelerates our mission to find a cure for this disease that touches all of our lives, and the lives of those we love.
“We had a beautiful, perfectly healthy, normal 20-year-old. She was driven. She was in school to become a homicide detective. One minute she was there and the next, she was gone. With no warning. This disease can change your life in a matter of minutes. I will never be the same person that I was. But I will make something beautiful out of this tragedy. It is my goal, my mission. Maybe the reason this happened to us is so that we could do something about it. So we can make sure people know about this disease, to inspire more people to get tested and to get diagnosed for HHT. This doesn’t have to happen to another family.”
– Susan Wallace
Here are some ways you can increase Awareness of HHT
Download a press kit to send to your local newspaper:
You’ll find a news release, daily fact sheets, and an HHT by the Numbers graphic to use in your local outreach.
You can also share the daily facts on your social media networks with the hash tag #InThisTogether to raise awareness amongst everyone you know.
Talk to your Healthcare Providers about HHT
Download a brochure to give them on your next visit.
Here Are More Ways You Can Build Awareness
Get the Merch!
Buy an Awareness T-Shirt
Take part #InThisTogether with us by purchasing a T-shirt, Wristband or Magnet for HHT Awareness Month and Global Awareness Day. Looking for more Cure HHT Swag, check out the Cure HHT Zazzle Store
June 13 - 16th
Annual Scientific Conference
Watch Our Website and Facebook Page for details from the 13th International Scientific Conference in Puerto Rico.
June 23rd
Global HHT Awareness Day
Mark your calendar for Global HHT Awareness Day, June 23. Share this logo on your social media networks with the hashtag #InThisTogether