Why is June HHT Awareness Month so important? What does raising Awareness have to do with finding a cure? Everything!
How You Can Increase Awareness of HHT
Talk to your Healthcare Providers about HHT
Download a fact sheet to share with your physician. This compact fact sheet can be pinned to your refrigerator for easy access in the event of an emergency, where physicians who may not be familiar with HHT are providing care. The fact sheet includes a brief summary, common complications and misdiagnoses, insurance codes, and available resources to assist in treatment.
Cure HHT hosts several educational events and community building opportunities each year!
Some of these events include regional educational conferences for both patients and physicians, and family walks. Additionally, we offer free educational materials in our extensive Resource Library.
Share Your Story
Sharing your HHT story strengthens and empowers our community.
It can make all the difference to know you’re not alone when living with a rare disease like HHT.
Download a press kit to send to your local newspaper:
You’ll find a news release, Top 20 HHT Facts sheet, and an HHT by the Numbers graphic to use in your local outreach.
You can also share the Top 20 HHT Facts Sheet on social media to raise awareness amongst everyone you know.