HHT June Awareness Month
Just one HHT diagnosis has the potential to save the lives of many! As a genetic disorder – passed down from parent to child – the diagnosis of HHT for a single family member can branch into answers and life-saving treatments for several generations of a family! When we say HHT awareness saves lives…it’s not an exaggeration.
Though we have made great strides in shining a light on HHT over the years, we still need your support to make HHT a more recognized disease! Donate today to help HHT Awareness take root in your community — plant the seed of awareness!Learn More >>
HHT Global Awareness Day
It’s the most important month of the HHT calendar year — HHT June Awareness Month is here! Rally your family and friends to join our fight to raise awareness and save lives! This year, we’re thrilled to announce we have secured our LARGEST MATCH EVER! A generous group of donors have agreed to double the first $100,000 we raise!
We’re doing things a bit differently this year, so stay tuned all month long for patient stories, resources highlighting…Learn More >>
International HHT Guidelines
EXPLORE RECOMMENDATIONS BY TOPIC AREA, VIEW CUSTOM CARE CHECKLISTS, AND MUCH MORE.
Find the most up-to-date resources to manage your HHT.
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.