Skip to content

Traducción Española

What's Happening

HHT June Awareness Month

Just one HHT diagnosis has the potential to save the lives of many! As a genetic disorder – passed down from parent to child – the diagnosis of HHT for a single family member can branch into answers and life-saving treatments for several generations of a family! When we say HHT awareness saves lives…it’s not an exaggeration.

Though we have made great strides in shining a light on HHT over the years, we still need your support to make HHT a more recognized disease! Donate today to help HHT Awareness take root in your community — plant the seed of awareness!

Learn More >>

HHT Global Awareness Day

It’s the most important month of the HHT calendar year — HHT June Awareness Month is here! Rally your family and friends to join our fight to raise awareness and save lives! This year, we’re thrilled to announce we have secured our LARGEST MATCH EVER! A generous group of donors have agreed to double the first $100,000 we raise!

We’re doing things a bit differently this year, so stay tuned all month long for patient stories, resources highlighting…

Learn More >>
Root Your Family - Social Share

HHT June Awareness Month

HHT Global Awareness Day_2020

HHT Global Awareness Day

N. Kristin

One in a Million

Ford 1 - BBC Jersey (UK)

BBC News: Jersey woman calls for more awareness of rare condition

Golfer putting

14th Annual Stoner Open to Benefit Cure HHT

E-News_webpost

E-News: Insider Connection

HHT and Iron_graphic

Iron and HHT: Boosting Your Health & Energy with Iron-Rich Foods (RECORDED)

support-upstate

Find Support

Connect with the Cure HHT community and find the latest resources including treatment centers, patient conferences, webinars and more.

LEARN MORE
research-upstate

Research for a Cure

Thanks to our supporters we're making exciting strides - gaining new insights into the cause, development and progression of this disease.

LEARN MORE
donate-upstate

Who We Are

Constantly working for a brighter future for those with HHT through awareness, education and research - Cure HHT is the cornerstone of the HHT Community.

LEARN MORE

International HHT Guidelines

EXPLORE RECOMMENDATIONS BY TOPIC AREA, VIEW CUSTOM CARE CHECKLISTS, AND MUCH MORE.

Find the most up-to-date resources to manage your HHT.

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

LEARN MORE
1 in
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic disorder of the blood vessels that affects approximately 1 in 5,000 people worldwide.
%
of people with HHT are undiagnosed
Scroll To Top