Through awareness, we are unifying the HHT community, educating the public and advocating for patients and families all across the world.
And through awareness, Cure HHT is able to make strides in fulfilling its mission to find, treat and cure this disease.
This Little Light of Mine
Marsha Hansen's Special Tribute for HHT
With this HHT Awareness Month's theme of empowering others by shedding a light on this disease, Marsha has partnered with iTunes to have the song available for download, and proceeds from each purchase of the song will go to Cure HHT.
LigHHTUp the World for HHT
Many from across the world came together on Friday, June 23rd for Global HHT Awareness Day to honor the ones they love by lighting a candle. Check out the map below to see just how far HHT awareness spread!
Let’s #LigHHTUp the World Together for HHT!
A Special Tribute to Those Who Enlighten All about HHT
So many have joined us over the years to support this cause. We want to honor the following people who have made an incredible impact for this disease and who have made a difference in the lives of those who have HHT.
Trish Linke was a light in the dark for families managing the fear and confusion that can surround an HHT diagnosis. She helped thousands over the twenty-four years that she volunteered. To see how Trish’s memory lives on, visit her special tribute page below:
In June 2015, Cure HHT launched Make the Invisible Visible to bring light to this disease, and to double the diagnosis rate. To see the impact of this campaign and read stories from our Hope Wall, visit the page below:
Leonard Wayne Hanks
Leonard Wayne Hanks, affectionately called "Doc" by his friends and family, was passionate about raising HHT awareness through his famous blood drives, which he started in Louisiana and that were replicated across the country. When Doc passed in November 2016, Cure HHT knew that we lost someone who was an integral part of our community. We created a special tribute to Doc, which you can visit below.
Cure HHT does so much for so many impacted by HHT, and to do more they need YOUR help!
Every dollar makes a difference for this cause so if you are able,
please support Cure HHT with a contribution today.