Category: Resource Library
Downloadable and linked resources. Posts in this category appear automatically on the Resource Library page.
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Pumping Iron in HHT
This handout by Ronalee Robert, Registered Dietician at the St. Michael’s Hospital HHT Center in Toronto, Canada was developed for the Patient & Family…
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Iron Deficiency in HHT
Iron deficiency is common among HHT patients and is primarily a consequence of bleeding from telangiectasias in the lining of the nose and intestinal…
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How to Appeal Health Insurance Denial
Simple instructions to follow if your health insurance claim has been denied.
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Pulmonary Hypertension and HHT (recorded)
Dr. Murali Chakinala, Co-Director of the Washington University HHT Center of Excellence, connects the dots between HHT and Pulmonary Hypertension. He discusses how HHT…
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My Partner Has HHT
When your partner or spouse has HHT, you are also affected by the disease. Learn how your partner is affected by HHT, what you…
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HHT & Depression
The stress of living with a genetic disease can lead to depression. Learn how to recognize the signs and symptoms.
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Aging Patients with HHT
Aging can create health care challenges. With the proper care, aging patients with HHT can maintain a high quality of life. Learn how to…
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HHT & Stroke
Strokes are very common in the general population and can be prevented in HHT. Strokes don’t just affect the elderly with HHT, they can…
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I Have HHT: For Kids
Give your child the tools to overcome HHT challenges. Kids have a natural desire to understand the world around them and HHT can be…
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Coping with HHT: For Teens
It’s time to take control of your health. As a teenager, you can begin taking care of your HHT health needs and making decisions…