Category: Resource Library
Downloadable and linked resources. Posts in this category appear automatically on the Resource Library page.
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Know the Signs & Symptoms of HHT
Recognizing HHT symptoms is half the battle. Knowing the signs and symptoms of HHT can help save a life.
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What Does This All Mean to Me and My Family? (recorded)
Dr. Justin McWilliams, Co-Director of the HHT Center of Excellence at the University of California Los Angeles, highlights the recommended screening and treatment guidelines…
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De Novo Arteriovenous Malformation in a Patient with HHT
Journal of Neurosurgery. Pediatrics. Authors: Yusuke Shimoda, Toshiya Osanai, Naoki Nakayama, Satoshi Ushikoshi, Masaaki Hokari, Hideo Shichinohe, Takeo Abumiya, Ken Kazumata, and Kiyohiro Houkin.…
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Cerebrovascular Manifestations of Hereditary Hemorrhagic Telangiectasia
Stroke. Authors: Waleed Brinjikji, Vivek N. Iyer, Thomas Sorenson, and Giuseppe Lanzino. This article is available for public use and does not require purchase.
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Lower Risk of Intracranial Arteriovenous Malformation Hemorrhage in Patients with HHT
Neurosurgery. Authors: Wuyang Yang, Ann Liu, Alice L. Hung, Maria Braileanu, Joanna Y. Wang, Justin M. Caplan, Geoffrey P. Colby, Alexander L. Coon, Rafael…
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Intravenous Bevacizumab for Complications of HHT: A Review of Literature
International Forum of Allergy & Rhinology. Authors: Natalia P. Arizmendez, Luke Rudmik, and David M. Poetker. This article can be purchased directly from the…
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Dose-Response Relationship of Bevacizumab in HHT
Mabs. Authors: Nicolas Azzopardi, Sophie Dupuis-Girod, David Ternant, Anne-Emmanuelle Fargeton, Isabelle Ginon, Frédéric Faure, Evelyne Decullier, Adeline Roux, Marie-France Carette, Brigitte Gilbert-Dussardier, Pierre-Yves Hatron,…
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Hemorrhage Rates from Brain Arteriovenous Malformation in Patients with HHT
Stroke. Authors: Helen Kim, Jeffrey Nelson, Timo Krings, Karel G. terBrugge, Charles E. McCulloch, Michael T. Lawton, William L. Young, Marie E. Faughnan, and…
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Hereditary Hemorrhagic Telangiectasia: Genetics and Molecular Diagnostics in a New Era
Frontiers in Genetics. Authors: Jamie McDonald, Whitney Wooderchak-Donahue, Chad VanSant Webb, Kevin Whitehead, David A. Stevenson and Pinar Bayrak-Toydemir. This article is available for…
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Optimal Management of HHT
HHT remains frequently underdiagnosed and many families do not receive the appropriate screening and treatments. This article provides an overview of the clinical features…