Category: Resource Library
Downloadable and linked resources. Posts in this category appear automatically on the Resource Library page.
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Surgeon General’s My Family Health Portrait
Completing your family tree is a critical first step in identifying family members who may have inherited HHT. Provided by the Surgeon General, “My…
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Learn More About HHT Brochure
Everything you need to know about HHT all in one place. You can gain a comprehensive understanding of the disease from diagnosis, screening, genetic…
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Pulsed Dye Laser Treatment
Dermatology is a specialty not commonly represented in the HHT medical community but many HHT patients experience symptoms relating to their skin. This handout…
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Learn About HHT Genetic Testing
Genetic testing is a critical component of your HHT journey and family history. Get answers to the most commonly asked genetic testing questions. Specifically,…
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Hazardous Natural Health Products in HHT
HHT patients can bleed easily, which is why products that may thin your blood or reduce your ability to clot can be very dangerous.…
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FDA Food and Drug Interactions
What you eat and drink can affect the way your medicines work. Use this guide to alert you to possible “food-drug interactions” and to…
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Iron Preparation Charts
This table of iron products, dosages and general comments was developed by Dr. Raj Kasthuri, Hematologist and Director of the UNC Chapel Hill HHT…
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Low Iron Levels and Blood Clots in HHT
You probably know that people with HHT are often short of iron because of bleeding, particularly from the nose. Being short of iron is…
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Prophylactic Antibiotics
HHT, Antibiotics, Dental Work – How to determine if you need prophylactic antibiotics before any “dirty” procedure. With HHT, the concern is that bacteria…
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Glossary of HHT Terms
Your Guide to HHT Medical Terminology. HHT impacts multiple organs and is defined by a variety of medical terms. To advocate for your healthcare…