Category: Resource Library
Downloadable and linked resources. Posts in this category appear automatically on the Resource Library page.
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A Guide to Genetics and Health
Genetic Alliance created this customizable Guide to Genetics and Health for you to share with your family or community. This simple guide covers topics…
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Epistaxis Journal
Track your nosebleeds with this journal developed by an ENT specializing in HHT. It is important to give your doctor an accurate picture of…
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Difference Between Social Security Income (SSI) and Social Security Disability Insurance (SSDI)
Are you disabled? Learn the difference between two federal government assistance programs, Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI), and the…
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Prevalence and predictors of anemia in HHT
American Journal of Hematology. Authors: Kasthuri, RS, Montifar, M., Nelson, J., Kim, H., Lawton, MT, Faughnan, ME, and the Brain Vascular Malformation Consortium HHT…
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Depression and Post-Traumatic Stress Disorder in Individuals with HHT
Thrombosis Research. Authors: Shruti Chaturvedi, Marianne Clancy, Nicole Schaefer, Olalekan Oluwole, and Keith R. McCrae. This article is available for public use and does…
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Asymptomatic Pulmonary Arteriovenous Malformations in Children with HHT
Pediatric Pulmonology. Authors: Ashley M. Gefen and Andrew J. White. This article can be purchased directly from the publisher.
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Epistaxis Severity Score
The ESS was developed through a Cure HHT research grant. This online tool is to calculate the severity score of nosebleeds. Share this tool…
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Health Benefits of Geranium Essential Oil
The Essential Oil of Geranium has a lot to offer HHT patients. Geranium Oil can stop bleeding in two ways: it causes blood vessels…
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PH and HHT Physician Brochure
PH can develop in HHT as a consequence of a high cardiac-output (HO) state. As a physician it is important that you understand the…
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Screening for Pulmonary AVMs
This handout provides HHT patients and physicians a step-by-step guide to the pulmonary (lung) arteriovenous malformation (PAVM) screening process using Contrast Echocardiography (CE).