Category: Resource Library
Downloadable and linked resources. Posts in this category appear automatically on the Resource Library page.
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My Child Has HHT: Screening Guidelines
Screening your child for HHT is an essential part of their preventive health care. HHT runs in families and each child born has a…
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Talking to Your Physician about HHT
It’s important to talk to your doctor about your HHT. Use this fact sheet as a resource when you and your doctor discuss your…
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Advice For People Newly Diagnosed With HHT
You’ve just been diagnosed with HHT, now what? This fact sheet will help guide you through your recent diagnosis.
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20-year Follow-Up Study of Danish HHT Patients – Survival and Causes of Death
Orphanet Journal of Rare Diseases. Authors: Anette Kjeldsen, Katrine Saldern Aagaard, Pernille Mathiesen Tørring, Sören Möller and Anders Green. This article is available for…
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Effect of Topical Intranasal Therapy on Epistaxis Frequency in Patients with HHT. A Randomized Clinical Trial.
JAMA. Authors: Kevin J. Whitehead, MD, Nathan B. Sautter, MD and Justin P. McWilliams, MD. This article is available for public use and does…
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Effect of Bevacizumab Nasal Spray on Epistaxis Duration in HHT. A Randomized Clinical Trial
JAMA. Authors: Sophie Dupuis-Girod, PhD, Alexis Ambrun, MD, and Evelyne Decullier, PhD. This article is available for public use and does not require purchase.
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Treatment of Hereditary Hemorrhagic Telangiectasia-Related Epistaxis
Otolaryngologic Clinics of North America. Authors: Nathan B. Sautter and Timothy L. Smith. This article can be purchased directly from the publisher.
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Diagnosis and Misdiagnosis of HHT
HHT signs and symptoms are not recognized and often mistaken for other conditions. Misdiagnosis and delay in diagnosis pose the greatest risk to a…
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Living with HHT
Living with HHT can be stressful at times, and most people can manage it. HHT does not have to define your life. Follow these…
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Family Ties: Genetic Testing
As a hereditary disease, HHT has the potential to devastate families if not identified and treated. Some of the most easily identifiable symptoms of…