Category: Resource Library
Downloadable and linked resources. Posts in this category appear automatically on the Resource Library page.
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Tectonic Reports Early Safety Data for TX2100: What It Means for HHT Research
The hereditary hemorrhagic telangiectasia (HHT) treatment landscape continues to grow. On September 29, Tectonic Therapeutic announced early clinical results for TX2100, an investigational therapy…
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AVMs: Know the Signs
An arteriovenous malformation (AVM) is a tangle where arteries connect straight to veins, skipping the capillaries that normally slow the blood down. Many cause…
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HHT Genetic Testing Labs in North America
A physician or genetic counselor must order all laboratory tests. The laboratories have requested that each patient contact their HHT Center physician, medical geneticist…
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Your Samples, Your Impact: How the Cure HHT Biobank is Accelerating Research
Did you know that a simple blood sample can help answer some of the biggest questions in HHT? Join us to learn how the…
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State of HHT: An Update from Cure HHT’s CEO
Join Cure HHT’s CEO for a comprehensive update on the state of the organization and the organization’s work on behalf of the community. This…
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Town Hall: Cure HHT Centers of Excellence Program Updates
Cure HHT is committed to improving care, supporting providers, and helping ensure that more patients can access the specialized expertise they need. Join our…
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REST for Caregivers
To all our HHT caregivers, family members, and loved ones: you deserve visibility too. Did you know that approximately 1 in 5 adults provide…
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Women’s Health & HHT: Across the Lifespan
In recognition of Women’s Health Month, join us for a conversation on the unique ways HHT affects women across every stage of life. This…
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Brain AVMS – Recent Advances in Imaging and Management (Recording)
In this session Dr. Krings will describe recent advances in imaging, neurointervention and medical management in patients with Brain Arteriovenous Malformations. In particular he…
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Discovering the HHT Genes: A Fireside Chat with Douglas Marchuk (Recording)
Our understanding of HHT is constantly evolving. If you haven’t been to a conference in a few years, or it’s been a while since…