Category: Resource Library
Downloadable and linked resources. Posts in this category appear automatically on the Resource Library page.
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Vitamin D levels are Associated with Epistaxis Severity and Bleeding Duration in Hereditary Hemorrhagic Telangiectasia
A retrospective chart review of 198 patients was performed to explore the relationship between vitamin D levels and the ESS in order to explore…
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The Current Role of Bevacizumab in the Treatment of Hereditary Hemorrhagic Telangiectasia Related Bleeding
Mayo Clinic. Author: James R. Gossage, MD This article is available for public use and does not require purchase.
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Intravenous Bevacizumab for Refractory Hereditary Hemorrhagic Telangiectasia Related Epistaxis and Gastrointestinal Bleeding
Mayo Clinic. Authors: Vivek N. Iyer, MD, MPH; Dinesh R. Apala, MBBS; Bibek S. Pannu, MBBS; Aditya Kotecha, MBBS; Waleed Brinjikji, MD; Michael D.…
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Surgical Treatment vs Nonsurgical Treatment for Brain Arteriovenous Malformations in Patients with HHT: A Retrospective Multicenter Consortium Study
Neurosurgery. Authors: Meybodi, AT, Kim, H., Nelson, J., Hetts, SW., Krings, T, terBrugge, KG, Faughnan, ME, Lawton, MT, and the Brain Vascular Malformation Consortium…
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HHT and Insurance: Overview, resources, and out-of-network concerns
Families with HHT have many considerations in regard to health insurance coverage. This article will provide a brief overview of the broad spectrum of…
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Genetic Testing and HHT
Genetic testing is the only way to diagnose HHT for a person who is at risk for HHT but who does not meet the…
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HHT: Caring for the Younger Generation (recorded)
Lynne Sekarski, MSN, RN, CPN, nurse coordinator for the St. Louis Children’s Hospital HHT Center of Excellence at Washington University, provides an in-depth conversation…
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Living with HHT: Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia
By Sara Palmer, PhD In this recently published book, psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope…
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Diagnosis and Procedure Codes for HHT
Diagnosis and procedure codes are important for insurance processing, but they also help determine a more accurate prevalence of the disease. Make sure your…