Category: Resource Library
Downloadable and linked resources. Posts in this category appear automatically on the Resource Library page.
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My HHT GI Bleeding Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their…
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My HHT Brain VM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their…
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My HHT Pulmonary AVM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their…
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My Child’s HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their…
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My HHT Pregnancy & Delivery Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their…
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My HHT Anemia and Iron Deficiency Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their…
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Physician Fact Sheet
A compact fact sheet that can be hung on your refrigerator or carried with you to a new physician appointment, and shared in the…
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Becoming a Family Ambassador
Telling your family about hereditary hemorrhagic telangiectasia (HHT) means asking relatives to take on a diagnosis they did not go looking for, and the…
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Bevacizumab (Avastin) Use In HHT
Hereditary hemorrhagic telangiectasia (HHT, also known as OslerWeber-Rendu Syndrome) is a condition that is characterized by focal proliferation of blood vessels (vascular malformations) in…
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Understanding Your Positive SMAD4 Genetic Result
A pathogenic SMAD4 result means juvenile polyposis syndrome, and it may also mean hereditary hemorrhagic telangiectasia (HHT). This patient guide explains what the result…