Category: Resource Library
Downloadable and linked resources. Posts in this category appear automatically on the Resource Library page.
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My HHT Diagnosis Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their…
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My HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their…
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Ask The Doctor: Tackling Anemia and Iron Deficiency (Recorded)
Feeling tired? Weak? Short of Breath? These symptoms could be related to HHT induced anemia and iron deficiency. With anemia affecting 50% of people…
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Virtual Meet-up: Ask the Doctor – Nosebleeds 101 (Recorded)
Watch our “Ask the Doctor” series with Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and HHT patient, Chelsea McBride as they discuss EVERYTHING…
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Ask the Doctor: HHT and Pulmonary Hypertension (recorded)
Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and Michael Knaapen, Director, Patient and Caregiver Programs at the Pulmonary Hypertension Association, discuss the dual…
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PH and HHT Patient Brochure
Did you know that if you have HHT you are at risk for Pulmonary Hypertension? The Pulmonary Hypertension Association developed a brochure for PH…
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HHT Lung AVMs – A Tangled Web (recorded)
Dr. David Riggans, Interventional Radiologist from the Augusta Vascular Center at the Augusta University HHT Center presents his talk, “HHT Lung AVMs – A…
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IVF and Preimplantation Genetic Testing for HHT (recorded)
Katie Wusik Healy, LGC, MS, Genetic Counselor at the Cincinnati HHT Center of Excellence, talks about pre-implantation genetic testing (PGT), including what you might…
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Anemia and Iron Deficiency in HHT (recorded)
Anemia is commonly experienced by those affected with HHT and it frequently results from bleeding of the nose and/or gastrointestinal tract. Dr. Adrienne Hammill,…
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Screening & Treatment of Brain AVMs in HHT (recorded)
Have you been screened for a brain AVM? If you have a brain AVM, do you know the guidelines for screening and treatment? Arteriovenous…