Category: Resource Library
Downloadable and linked resources. Posts in this category appear automatically on the Resource Library page.
-
Liver Vascular Malformations & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
-
Anemia, Iron Deficiency & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
-
Diagnosis of HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
-
Lung (Pulmonary) Arteriovenous Malformations & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
-
More Than a Nosebleed: HHT
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic condition affecting up to 1.4 million people worldwide. HHT is treatable, but no cure is yet available.…
-
The Science Behind the 2019 Scientific Conference (recorded)
Philippe Marambaud, PhD and Andy White, MD discuss important advances in HHT research which were presented at the 2019 HHT International Scientific Conference in…
-
Living with HHT (recorded)
Carrie Fiasco, Licensed Social Worker with the Cincinnati HHT Center of Excellence, explores the effects of HHT on your mental health and family relationships.…
-
My Teen Years HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their…
-
My HHT Nosebleed Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their…
-
My HHT Liver VM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their…