Category: Resource Library
Downloadable and linked resources. Posts in this category appear automatically on the Resource Library page.
-
Screening for pulmonary and brain vascular malformations is the North American standard of care for patients with hereditary hemorrhagic telangiectasia (HHT): A survey of HHT Centers of Excellence
Vascular Medicine. Authors: Alexandra Kilian, Marianne S. Clancy, Scott Olitsky, James R. Gossage and Marie E. Faughnan. This article is available for public use…
-
Efficacy of Timolol in a Novel Intranasal Thermosensitive Gel for HHT–Associated Epistaxis: A Randomized Clinical Trial
JAMA Otolaryngology Head & Neck Surgery. Authors: Andrew M. Peterson, MSCI, Jake J. Lee, MD, MSCI, DorinaKallogjeri, MD, MPH, et al. This article can be purchased directly from…
-
Bevacizumab for treating HHT patients with severe hepatic involvement or refractory anemia
PLoS One. Authors: Carolina Vázquez, María Laura Gonzalez, Augusto Ferraris, Juan Carlos Bandi, and Marcelo Martín Serra. This article is available for public use…
-
National Organization for Rare Disorders (NORD)
Cure HHT partners with NORD to empower the rare disease community. NORD maintains a Rare Disease Database, Rare Action Network, Patient Assistance Program, and…
-
American Society of Hematology – Patient Resources
Have questions about anemia? The American Society of Hematology has the answers. The American Society of Hematology has developed resources for the patient section…
-
Pulmonary Hypertension Association
The Pulmonary Hypertension Association (PHA) is a 501(c) organization non-profit support, education, advocacy and awareness association for pulmonary hypertension (PH). It provides information to the public about the illness and…
-
Children & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
-
Women’s Health, Pregnancy & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
-
Patient Symptom & Care Checklists
Download and distribute “My HHT Care Checklists” to patients to complete and return to you, including: HHT Care, HHT Diagnosis, Anemia, Brain VMs, Pediatric,…
-
HHT International Clinical Guidelines (2020)
Published by the Annals of Internal Medicine in 2020, the “Second International Guidelines for the Diagnosis and Management of HHT” is a comprehensive document…