Becoming a Family Ambassador
Telling your family about hereditary hemorrhagic telangiectasia (HHT) means asking relatives to take on a diagnosis they did not go looking for, and the first reaction is often denial, resistance, or anger. Sara Palmer, PhD, lays out five steps for doing it anyway: talking to parents, siblings, and children one at a time rather than all at once, using a holiday gathering or a message to the whole family, making genetic testing easy to say yes to, and tracking down the relatives nobody has spoken to in years.