June is HHT Awareness Month
Every June, and on Global HHT Awareness Day on June 23, people who live with hereditary hemorrhagic telangiectasia (HHT) and the families around them put this disease in front of everyone they know. The 2026 theme is Visible Together, and it marks 35 years since a group of families and physicians founded Cure HHT.
Your part Download materials Social posts About the campaign
Your part
What you do with these is what makes June work
Cure HHT makes the materials. The month itself runs on community members: a poster taped up in a clinic waiting room, a proclamation signed by a mayor because someone asked, a post that makes a cousin recognize their own family. None of that happens from an office in Maryland.
Everything below is free, and free to change. Crop it, translate it, add your own photo, put your organization’s name on it. No permission needed.
1
Find what fits your people
A workplace, a school, a clinic, and a family group each need something different. Filter the materials below rather than downloading all of them.
2
Make it yours
The Canva templates are editable. The Word templates are meant to be filled in. A message in your own words beats a perfect graphic.
3
Post with #HHTAwareness
The hashtag is how people who have never met find each other, and how someone searching their symptoms at 2am lands somewhere useful.
4
Tag us
Tag Cure HHT and we will share what you post with our own audience, which is how a local effort reaches the whole community.
Downloads
Take what you need, change what you like
Filter by what you are looking for, or by the file type if you already know what you can open.
What it is for
File type
DOCX · Templates
Proclamation template
Ask your mayor or governor to formally recognize HHT Awareness Month.
PDF · For caregivers
Caregiver tip sheet
For the people who drive to appointments, track the ferritin, and hold the family together.
To add a resource, upload the file and duplicate any card above. The line at the top of each card, such as “PDF · Print”, is what builds the filter chips, so keep that format and the chips look after themselves.
Our campaign: Visible Together
If we stand together, HHT cannot be ignored
HHT is called a rare disease, but it does not feel rare to the people and families living it every day. Too many individuals remain undiagnosed. Too many families still face delays in answers, care, and support. Too many lives have been lost before having answers or effective treatments.
After the Beyond the Visible campaign in 2025, this year takes the idea a step further. Visible Together is a call for collective visibility. Progress happens when the whole community, patients, caregivers, clinicians, researchers, donors, and advocates, work together to make HHT harder to miss and impossible to ignore.
When an ambitious group of families and physicians came together to establish Cure HHT in 1991, the goal was simple: create change. Change how readily this disease is recognized, change the support available to people affected by HHT, and change access to truly expert care. Thirty-five years on, we are closer than ever to breakthrough treatments.
Why June matters
27 years
The average delay before an HHT diagnosis. Awareness is what shortens it.
80%
Of people with HHT do not yet know they have it
June 23
Global HHT Awareness Day
1991
The year families and physicians founded Cure HHT to change all of this
Campaign name, theme, matching-gift details, and store collection change each year. Check them before June. For fundraising questions, contact officeofphilanthropy@curehht.org.
Ready to post
Copy, paste, post
Use these as they are, or edit them to sound like you. Tag Cure HHT on Facebook @hht.org, Instagram @cure_hht, X @curehht, and LinkedIn Cure HHT, and use #HHTAwareness.
HHT is not just nosebleeds. It can also cause fatigue, AVMs, and other unseen challenges. See beyond the surface and support the HHT community throughout June. Learn more: curehht.org/awareness #HHTAwareness
June is HHT Awareness Month. Hereditary hemorrhagic telangiectasia is a rare genetic disorder affecting blood vessels. It impacts 1 in 4,000 people. Let us raise awareness and support those living with HHT. Learn more at curehht.org/awareness #HHTAwareness
Did you know June is HHT Awareness Month, and that June 23 is Global HHT Awareness Day? Someone I love lives with HHT. It is a rare condition that needs more awareness. Learn about HHT and how you can help: curehht.org/awareness #HHTAwareness
June = HHT Awareness Month. Let us learn, share, and support. curehht.org/awareness #HHTAwareness