Cure HHT Resource Library

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Welcome to the Cure HHT Resource Library - a comprehensive library of the latest HHT information, fact sheets, publications, videos and more. Below you'll find our most popular resources listed first, and you can use the drop-down menus to filter by audience, topic or type. Use the search field to search by keyword.

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Webinar

HHT Scientific Conference Summaries (recorded)

Scientific Literature

Applicability of the Curacao Criteria for the Diagnosis of HHT in the Pediatric Population

Newsletter

Cure HHT Newsletter 2018 Volume 3

Scientific Literature

5’UTR Mutations of ENG Cause Hereditary Hemorrhagic Telangiectasia

Scientific Literature

Endoglin Mediates Vascular Maturation by Promoting Vascular Smooth Muscle Cell Migration and Spreading

Scientific Literature

Thalidomide stimulates vessel maturation and reduces epistaxis in individuals with hereditary hemorrhagic telangiectasia

Article

Pulmonary Arteriovenous Malformations (PAVMs) and Hereditary Hemorrhagic Telangiectasia (HHT)

Scientific Literature

Soluble FLT1 Gene Therapy Alleviates Brain Arteriovenous Malformation Severity

Webinar

Tangled Web of HHT (recorded)

Organization

Pulmonary Hypertension Association

Webinar

Genetics: Unraveling Your DNA (recorded)

Scientific Literature

Transthoracic contrast echocardiography for detection of pulmonary arteriovenous malformations in HHT: How can the process be improved for patient safety?

Video

HHT is More than a Bleeding Nose – What an ENT Doctor Needs to Know About HHT and Why.

Scientific Literature

The Current Role of Bevacizumab in the Treatment of Hereditary Hemorrhagic Telangiectasia Related Bleeding

Scientific Literature

Hereditary Haemorrhagic Telangiectasia: Novel cardiopulmonary insights

Scientific Literature

Abstracts – 12th HHT International Scientific Conference (2017)