Leadership & Board

Foundation Staff

Marianne Clancy, MPA

CEO and Managing Director, Strategic Partnerships

Adrienne Barton, CFRE

Chief Operating Officer

Nicole Schaefer

Chief Administrative Officer

Tania Competiello

Senior Director, National Healthcare Programs

Crystal Cottrill

National HHT Coordinating Center Grant Manager

Cassi Friday, PhD

Director, Research Programs and Grants

Michael Kennedy

Bookkeeper

Cathleen Kinnear

Operations & Business Systems Associate

Mary Leigh Krock

Strategic Partnership Specialist

Nolie Krock

Clinical Care Network and Research Grant Consultant

Phyllis Loveland

Senior Manager, Development & Community Engagement

Valaree Machen, MS

Senior Manager, Brand Marketing

Ellie Olitsky, MBA

Community Manager

Scott Olitsky, MD, MBA

Global Center of Excellence and Outreach Director

Kassidy Swords

Research Coordinator

Hellen Tecle

Manager, Community Events & Education

Murali Chakinala, MD

Senior Clinical Research Advisor

Marie Faughnan, MD, MSc

Vice Chair, North American Scientific and Medical Advisory Council

Gossage_James - Medical Director cropped

James Gossage, MD

Vice Chair, Center of Excellence Executive Committee

Christopher C.W. Hughes, PhD

Chair, North American Scientific and Medical Advisory Council

Board of Directors

Learn more about our Cure HHT Board of Directors

John Dunn, MA

President

Scotts Valley, CA

Gabriella Choi, MBA

Vice President

Venice, CA

Terry Thompson, MBA

Treasurer

Bedminster, NJ

Karen Silber Weissel, PhD

Secretary

Newton, MA

Anthony Anzell, Ph.D.

Board Member

Pittsburgh, PA

Scott Boatwright, J.D.

Board Member

Asheville, NC

Michael Nolan

Board Member

Cork, Ireland

Brandon Probst, PhD

Board Member

Lehi, UT

Dennis Sprecher, MD

Pazopanib Study Medical Monitor

Blue Bell, PA

Dennis Routledge

Emeritus Member

Somerset, NJ

Global Research and Medical Advisory Board

Hans-Jurgen Mager, MD, PhD

Chair

Pulmonology

St. Antonius Ziekenhuis

Rosemary Akhurst, PhD

Vice Chair

Scientist

University of California, San Francisco

Hanny Al-Samkari, MD

Hematology

Massachusetts General Hospital

Pinar Bayrak-Toydemir, MD, PhD

Scientist

ARUP Laboratories and Dept. Pathology University of Utah

Sabine Bailly, PhD

Scientist

INSERM

Joyce Bischoff, PhD

Scientist

Children’s Hospital Boston Harvard Medical School

Luisa Maria Botella, PhD

Scientist

Centro Investigaciones Biologicas, CSIC

Murali Chakinala, MD, FCCP

Pulmonology

Washington University School of Medicine

Mark S. Chesnutt, MD

Pulmonology

Dotter Interventional Institute, Oregon Health and Science University

Miles Conrad, MD

Interventional Radiology

University of California, San Francisco

Sophie Dupuis-Girod, MD, PhD

Pediatrician and Geneticist

Hospital Femme-Mere-Enfant

Marie E. Faughnan, MD, MSc

Past Chair

Pulmonology

St. Michaels Hospital

Urban W. Geisthoff, MD

Otolaryngology

Klinik fur Hals-, Nasen- and Ohrenhilkunde Universitatsklinikum GieBen und Marburg

James Gossage, MD

Pulmonology

Augusta University

Steven Hetts, MD

Neuroradiology

University of California, San Francisco

Christopher C. W. Hughes, PhD

Past Chair

Scientist

University of California, Irvine

Anette Kjeldsen, MD

Otolaryngology

Odense University Hospital

Masaki Komiyama, MD

Neuro-Interventional Radiology

Osaka City General Hospital

Franck Lebrin, PhD

Scientist

Leiden University Medical Center

Philippe Marambaud, PhD

Scientist

The Feinstein Institute for Medical Research/Northwell Health

Raj Kasthuri, MBBS

Hematology

University of North Carolina, Chapel Hill

Douglas Marchuk, PhD

Scientist,

Dept. of Molecular Genetics and Microbiology, Duke University Medical Center

Jamie McDonald, MS, CGC

Past Vice-Chair

Genetics Counselor,

University of Utah

Stryder Meadows, PhD

Scientist,

Meadows Lab – Tulane University

Meir Mei-Zahav, MD

Pediatrics,

Schneider Children’s Medical Center of Israel

Suk Paul Oh, PhD

Scientist

Barrow Neurological Institute / Dignity Health St. Joseph Hospital

Roxana Ola, PhD

Scientist

Heidelberg University

Marco Post, MD, PhD

Cardiology

St. Antonius Hospital

Felix Ratjen, MD, FRCP

Respiratory Medicine and Pediatrics

University of Toronto / The Hospital for Sick Children

Beth L. Roman, PhD

Scientist

University of Pittsburgh Graduate School of Public Health

Marcelo Serra, MD

Internal Medicine

Hospital Italiano

Dennis Sprecher, MD

Cardiology

Cure HHT Board Liaison

Calvin Vary, PhD

Scientist

Maine Medical Center Research Institute

Andrew White, MD

Pediatrics and Rheumatology

SSM Health Cardinal Glennon Children’s Hospital

Ingrid Winship, MDChB, MD, FRACP, FACD

Genetics

University of Melbourne Office for Research, Royal Melbourne Hospital

Lawrence H. Young, MD

Cardiology

Yale University School of Medicine

Alan Guttmacher, MD

Emeritus

Medical Genetics

Michelle Letarte, PhD

Emeritus

Scientist

Franklin J. Miller, MD

Emeritus

Interventional Radiology

Reed E. Pyeritz, MD, PhD

Emeritus

Medical Genetics

Karel G. terBrugge, MD, FRCP (C)

Emeritus

Interventional Neuroradiology

Peter B. Terry, MD

Past Vice-Chair and Emeritus

Pulmonology

Robert I. White, Jr, MD

Chair Emeritus

Interventional Radiology