Leadership & Board

Foundation Staff

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Marianne Clancy, MPA

CEO and Managing Director, Strategic Partnerships

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Adrienne Barton, CFRE

Chief Operating Officer

Nicole Schaefer

Chief Administrative Officer

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Tania Competiello

Senior Director, National Healthcare Programs

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Crystal Cottrill

National HHT Coordinating Center Grant Manager

Cassi Friday, PhD

Director, Research Programs and Grants

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Daneil Johnston

Grants & Finance Specialist

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Michael Kennedy

Bookkeeper

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Cathleen Kinnear

Operations & Business Systems Associate

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Nolie Krock

Clinical Care Network and Research Grant Consultant

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Phyllis Loveland

Senior Manager, Development & Community Engagement

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Valaree Machen, MS

Senior Manager, Content and Brand Strategy

Ellie Olitsky, MBA

Community Manager

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Scott Olitsky, MD, MBA

Global Center of Excellence and Outreach Director

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Katy O'Toole

Director, Major Gifts

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Kassidy Swords

Research Coordinator

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Hellen Tecle

Manager, Community Events & Education

Chakinala, Murali MD

Murali Chakinala, MD

Senior Clinical Research Advisor

Faughnan MD, Marie

Marie Faughnan, MD, MSc

Vice Chair, North American Scientific and Medical Advisory Council

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James Gossage, MD

Vice Chair, Center of Excellence Executive Committee

Hughes, Chris - GRMAB Chair

Christopher C.W. Hughes, PhD

Chair, North American Scientific and Medical Advisory Council

Board of Trustees

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John Dunn, MA

Chair

Scotts Valley, CA

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Gabriella Choi, MBA

Vice Chair

Venice, CA

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Terry Thompson, MBA

Treasurer

Bedminster, NJ

Karen Silber Weissel, PhD

Secretary

Newton, MA

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Anthony Anzell, Ph.D.

Trustee

St. Louis, MO

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Hara Levy, MD, MMSc

Trustee

Glendale, WI

Douglas Marchuk, PhD

Trustee

Chapel Hill, NC

VLUU L200 / Samsung L200

Michael Nolan

Trustee

Cork, Ireland

Probst, Brandon Ph.D.

Brandon Probst, PhD

Trustee

Lehi, UT

Dennis Sprecher, MD

Consulting Trustee

Bluebell, PA

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Dennis Routledge

Trustee Emeritus

Somerset, NJ

Global Research and Medical Advisory Board

Hanny Al-Samkari, MD

Chair

Hematology

Massachusetts General Hospital

Franck Lebrin, PhD

Vice-Chair

Basic Science

Leiden University

Rosemary Akhurst, PhD

Basic Science

University of California, San Francisco

Sabine Bailly, PhD

Basic Science

INSERM Grenoble

Pinar Bayrak-Toydemir, PhD

Genetics

ARUP Labs

Luisa Maria Botella, PhD

Scientist

Centro Investigaciones Biologicas, CSIC

Murali Chakinala, MD, FCCP

Pulmonology

Washington University School of Medicine

Mark S. Chesnutt, MD

Pulmonology

Dotter Interventional Institute, Oregon Health and Science University

Miles Conrad, MD

Interventional Radiology

University of California, San Francisco

Sophie Dupuis-Girod, MD, PhD

Genetics

Lyon, France

Marie E. Faughnan, MD, MSc

Pulmonology

University of Toronto

Urban W. Geisthoff, MD

Otolaryngology

University of Marburg, Germany

James Gossage, MD

Pulmonology

Augusta University

Steven Hetts, MD

Neuroradiology

University of California, San Francisco

Christopher C. W. Hughes, PhD

Vascular Biology

University of California, Irvine

Raj Kasthuri, MD

Hematology

University of North Carolina, Chapel Hill

Anette Kjeldsen, MD

Otolaryngology

Odense University

Masaki Komiyama, MD

Neuro-Interventional Radiology

Osaka City General Hospital

Hans-Jurgen Mager, MD

Hematology

Massachusetts General Hospital

Guido Manfredi, MD

Hepatology

Maggiore Hospital Crema, Italy

Philippe Marambaud, PhD

Basic Science

Feinstein Institute Northwell Health

Keith McCrae, MD

Hematology

Cleveland Clinic

Jamie McDonald, MS, CGC

Genetic Counselor

University of Utah

Stryder Meadows, PhD

Basic Science

Tulane University

Meir Mei-Zahav, MD

Pediatrics

Schneider Children's Hospital, Israel

S. Paul Oh, PhD

Basic Science

Barrow Neurological Institute

Michael Ohlinger, MD PhD

Radiology and Biomedical Imaging

University of California San Francisco

Roxana Ola, PhD

Basic Science

Heidelberg University

Jeffrey Pollak, MD

Interventional Radiology

Yale University

Marco Post, MD, PhD

Cardiology, PAH

St. Antonius Hospital

Felix Ratjen, MD, FRCP

Pediatrics

Toronto Sick Kids Hospital

Beth L. Roman, PhD

Basic Science

University of Pittsburgh

Bethany Samuelson-Bannow, MD

Hematology

Cleveland Clinic

Bill Sellers, MD

Cancer Research

Broad Institute

Marcelo Serra, MD

Internal Medicine

Hospital Italiano

Edda Spierkotter, MD

Pulmonology, PAH

Stanford

Michkael Tanter, PhD

Biomedical Imaging & Ultrasound

Paris

Andrew White, MD

Pediatrics

St. Louis Children’s Hospital

Ingrid Winship, MDChB, MD, FRACP, FACD

Genetics

Royal Melbourne

Lawrence H. Young, MD

Cardiology

Yale University