Leadership & Board

Foundation Staff

Marianne Clancy

Marianne Clancy, MPA

Executive Director and Senior Director, Strategic Partnerships

Nicole Schaefer

Chief Operating Officer

Riley Blevins, MBA

Senior Director, Global Community Engagement

Melissa Dickey_cropped

Melissa Dickey, RN, MSN, FNP

Director, National HHT Coordinating Center

Friday, Cassi_sq

Cassi Friday, PhD

Director, Research Programs and Grants

Crystal Cottrill_crop

Crystal Cottrill

Grant Administrative Assistant

Erica Gould_crop

Erica Gould, MJ, CFRM

Development Associate

Michael Kennedy_sq

Michael Kennedy

Bookkeeper

Cathleen_2 square

Cathleen Kinnear

Operations & Business Systems Associate

Leah Kopperman, MS

Salesforce Administrator

Krock, Mary Leigh_cropped

Mary Leigh Krock

Strategic Partnership Specialist

Phyllis Loveland_cropped2

Phyllis Loveland

Community Engagement Manager

Valaree Machen_cropped

Valaree Machen, MS

Brand Communications Manager

Aaron Meadows_cropped

Aaron Meadows

Research Coordinator

Perry, Leslie_cropped

Leslie Perry, RN, MS

BVMC Research Coordinator

Olitsky, Scott (2019) square

Scott Olitsky, MD, MBA

Global Center of Excellence and Outreach Director

Gossage_James - Medical Director cropped

James Gossage, MD

Vice Chair, Center of Excellence Executive Committee

Hughes, Chris - GRMAB Chair

Christopher C.W. Hughes, PhD

Chair, North American Scientific and Medical Advisory Council

Faughnan MD, Marie

Marie Faughnan, MD, MSc

Vice Chair, North American Scientific and Medical Advisory Council

Chakinala, Murali MD

Murali Chakinala, MD

Senior Clinical Research Advisor

Board of Directors

Learn more about our Cure HHT Board of Directors

Dunn, John_square

John Dunn, MA

President

Scotts Valley, CA

Choi, Gabriella_Square

Gabriella Choi, MBA

Vice President

Venice, CA

Marc Topaz_square

Marc Topaz, Esq.

Treasurer

Fort Washington, PA

Karen Silber Weissel, PhD

Secretary

Newton, MA

Anzell, Anthony Ph.D._Square

Anthony Anzell, Ph.D.

Board Member

Pittsburgh, PA

Scott Boatwright, J.D.

Board Member

Asheville, NC

Lichtig, Howard

Board Member

Shaker Heights, OH

McCune, Marijo 2_square

Board Member

Powell, OH

Probst, Brandon Ph.D.

Brandon Probst, PhD

Board Member

Lehi, UT

Dennis Sprecher, MD

Board Member

Blue Bell, PA

Board Member

OLYMPUS DIGITAL CAMERA

Dennis Routledge

Emeritus Member

Somerset, NJ

Global Research and Medical Advisory Board

Hans-Jurgen Mager, MD, PhD

Chair

Pulmonary,

St. Antonius Ziekenhuis

Rosemary Akhurst, PhD

Vice Chair

Scientist,

University of California, San Francisco

Hanny Al-Samkari, MD

Hematology,

Massachusetts General Hospital

Pinar Bayrak-Toydemir, MD, PhD

Scientist,

ARUP Laboratories and Dept. Pathology University of Utah

Sabine Bailly, PhD

Scientist,

INSERM

Joyce Bischoff, PhD

Scientist,

Department of Surgery, Children’s Hospital Boston Harvard Medical School

Luisa Maria Botella, PhD

Scientist,

Centro Investigaciones Biologicas, CSIC

Murali Chakinala, MD, FCCP

Pulmonary,

Div. Of Pulmonary & Critical Care Medicine Washington University School of Medicine

Mark S. Chesnutt, MD

Pulmonary,

Dotter Interventional Institute, Oregon Health and Science University

Miles Conrad, MD

Interventional Radiology,

UC San Francisco Medical Center Interventional Radiology Clinic

Sophie Dupuis-Girod, MD, PhD

Pediatrician and Geneticist,

Service de genetique, Hospital Femme-Mere-Enfant

Marie E. Faughnan, MD, MSc

Past Chair

Pulmonary,

St. Michaels Hospital

Urban W. Geisthoff, MD

Otolaryngology,

Klinik fur Hals-, Nasen- and Ohrenhilkunde Universitatsklinikum GieBen und Marburg

James Gossage, MD

Pulmonary,

Augusta University Medical Center, Division of Pulmonary Medicine

Steven Hetts, MD

Neuroradiology,

University of California San Francisco Medical Center

Christopher C. W. Hughes, PhD

Past Chair

Scientist, Professor and Chair,

Dept. of Molecular Biology & Biochemistry Univ. California, Irvine

Anette Kjeldsen, MD

Otolaryngology,

Dept. ORL-HNS, Odense University Hospital

Masaki Komiyama, MD

Neuro-Interventional Radiology,

Department of Neuro-Intervention, Osaka City General Hospital

Franck Lebrin, PhD

Scientist,

Ejnthoven Laboratory Leiden University Medical Center

Philippe Marambaud, PhD

Scientist,

Litwin-Zucker Center for Alzheimer’s Disease & Memory Disorders Zucker School of Medicine at Hofstra/Northwell, The Feinstein Institute for Medical Research/Northwell Health

Raj Kasthuri, MBBS

Hematology,

University of North Carolina Chapel Hill

Douglas Marchuk, PhD

Scientist,

Dept. of Molecular Genetics and Microbiology, Duke University Medical Center

Jamie McDonald, MS, CGC

Past Vice-Chair

Genetics Counselor,

University of Utah

Stryder Meadows, PhD

Scientist,

Meadows Lab – Tulane University

Meir Mei-Zahav, MD

Pediatrics,

Schneider Children’s Medical Center of Israel

Suk Paul Oh, PhD

Scientist,

Department of Neurobiology, Barrow Neurological Institute/Dignity Health St. Joseph Hospital and Medical Center

Roxana Ola, PhD

Scientist,

Heidelberg University

Marco Post, MD, PhD

Cardiology,

St. Antonius Hospital

Felix Ratjen, MD, FRCP (Canada)

Respiratory Medicine/Pediatrics,

University of Toronto/The Hospital for Sick Children

Beth L. Roman, PhD

Scientist,

Human Genetics, University of Pittsburgh Graduate School of Public Health

Marcelo Serra, MD

Internal Medicine,

Hospital Italiano

Dennis Sprecher, MD

Cardiology, Board Liaison

Calvin Vary, PhD

Scientist,

Center for Molecular Medicine, Maine Medical Center Research Institute

Andrew White, MD

Pediatrics and Rheumatology,

SSM Health Cardinal Glennon Children’s Hospital

Ingrid Winship, MDChB, MD, FRACP, FACD

Genetics,

University of Melbourne Office for Research, Royal Melbourne Hospital

Lawrence H. Young, MD

Cardiology,

Yale University School of Medicine, Section of Cardiovascular Medicine

Alan Guttmacher, MD

Emeritus

Medical Genetics

Michelle Letarte, PhD

Emeritus

Scientist

Franklin J. Miller, MD

Emeritus

Interventional Radiology

Reed E. Pyeritz, MD, PhD

Emeritus

Medical Genetics

Karel G. terBrugge, MD, FRCP (C)

Emeritus

Interventional Neuroradiology

Peter B. Terry, MD

Past Vice-Chair and Emeritus

Pulmonary

Robert I. White, Jr, MD

Chair Emeritus

Interventional Radiology