International HHT Centers of Excellence
Multidisciplinary care for hereditary hemorrhagic telangiectasia (HHT) in 17 countries across Europe, Asia, the Middle East, South America, and Oceania. Find the center nearest you, how to reach it, and the patient support group that serves your country.
26 centers in 17 countries
Find a center by country
Search for a country, a city, a hospital, or a clinician, or filter by region. Each country opens to its centers, how to reach them, and the national patient support group where one exists.
Argentina — Buenos Aires
Hospital Italiano de Buenos Aires, Buenos Aires
Servicio de Clínica Médica
Av Presidente Perón 4190
Ciudad de Buenos Aires, CP 1181, Argentina
Contact: Dr Marcelo Serra, Director, Unidad HHT
Tel: +54 (11) 4959-0200 ext. 8201 / 8868 / 5377
WhatsApp: +54 911 6403 4698
Website: www.hospitalitaliano.org.ar/hht and www.hospitalitaliano.org.ar/renduoslerweber
Patient support group: Asociación Argentina de Familias con HHT, on Facebook
Australia — Melbourne, Sydney
Royal Melbourne Hospital, Melbourne
Grattan Street
Parkville, VIC 3050
Contact: Prof Ingrid Winship
Tel: 03 9342 7151
Tel (international): +61 3 9342 7151
Royal Prince Alfred Hospital, Sydney
Missenden Road
Camperdown, NSW 2050
Send patient referrals to: Dr Edmund Lau
Fax: 02 9515 8196
Fax (international): +61 2 9515 8196
Belgium — Leuven
ROW/HHT expert centrum, University Hospitals Leuven
Bloedings- en Vaatziekten / Vascular Medicine and Haemostasis
Herestraat 49
3000 Leuven, Belgium
Email: row@uzleuven.be or blv@uzleuven.be
Fax: +32 16 34 34 91
Patient support group: www.hhtbelgium.be
China — Shenyang
The First Affiliated Hospital of China Medical University, Shenyang
Department of Radiology, The Institute of Vascular Interventional Radiology
No. 155, Nanjing Bei Street
Shenyang 110001, China
Contact: Dr Hongshan Zhong and Dr Ke Xu
Tel: +86 24 8328 2447
Fax: +86 24 8328 2629
Denmark — Odense
Odense University Hospital, Odense
Department of Otorhinolaryngology, Head and Neck Surgery
Sdr Boulevard 29
5000 Odense C, Denmark
Contact: Dr Anette Kjeldsen
Tel: +45 6541 4314 / Fax: +45 6619 2615
Genetics contact: Pernille Tørring, MD, PhD, Tel: +45 6541 1973
Secretary: Stine C. Nipgaard, Tel: +45 6541 1809
Website: Odense University Hospital (in Danish)
Patient support group: www.osler.dk
England (United Kingdom) — London, Hull and the Northeast
Hammersmith Hospital, London
Du Cane Road
London W12 0HS, England
Contact: Georgina Rudd for Dr Claire Shovlin, Tel: +44 20 8383 4831, Fax: +44 20 8383 3260
Contact: Dr James Jackson (secretary Pamela Brayshay), Tel: +44 20 8383 3485
Hull Royal Infirmary, Hull and the Northeast
Anlaby Road
Hull HU3 2JZ, England
Contact: Mrs Hilary Finnis and Dr Graham Robinson
Tel: +44 (0)1482 674608
Patient support group: Telangiectasia Self Help Group (TSHG): www.telangiectasia.co.uk
Contact: Diana Lawson, 39 Sunny Croft, Downley, High Wycombe, Bucks HP13 5UQ, England
France — Lyon, Paris
Hôtel-Dieu, Lyon
Service de Génétique
Quai Jules Courmont
69288 Lyon Cedex 02, France
Contact: Dr Sophie Dupuis-Girod
Tel: +33 4 72 41 32 95
Fax: +33 4 72 41 31 46
Hôpital Ambroise Paré, Paris
Consultation Pluridisciplinaire Maladie de Rendu-Osler
9, Avenue Charles de Gaulle
92104 Boulogne-Billancourt Cedex, France
Contact: Bénédicte Chesneau
Tel: +33 1 49 09 44 32
Patient support group: www.amro-hht-france.org
Germany — Essen, Cologne, Homburg, Marburg
Essen University Hospital, Essen
Hufelandstr. 55
45147 Essen, Germany
Contact: Essen Center for Rare Diseases (EZSE)
Tel: +49 201 723 2310
Fax: +49 201 723 6871
Holweide Hospital, Cologne
Kliniken der Stadt Köln / Hospitals of the City of Cologne
HNO-Abteilung / Department of Otorhinolaryngology
Neufelder Str. 32
D-51067 Köln, Germany
Contact: Ms Monica Hentschel
Tel: +49 221 8907 12727
Fax: +49 221 8907 2730
Universitätsklinikum des Saarlandes, Homburg
Diagnostische und Interventionelle Radiologie
Kirrberger Straße, Geb. 50.1
D-66421 Homburg, Germany
Contact: Diane Wagner-Jochem
Tel: +49 (0) 6841 162 6172
Fax: +49 (0) 6841 162 4678
Or contact the center through the patient support group, www.morbus-osler.de
Philipps-University Marburg, Marburg
Department of Otorhinolaryngology, University Hospital of Giessen and Marburg (UKGM), Campus Marburg
Baldingerstrasse
D-35043 Marburg, Germany
Contact: Prof Dr Geisthoff, through the secretaries
Tel: +49 6421 58 66478
Email: sekretariat.hno.mr@uk-gm.de
Website: UKGM ENT department and UKGM Marburg
Patient support group: www.morbus-osler.de
Ireland — Cork
Mercy University Hospital, Cork
Grenville Place
Cork, Ireland
Contact: Margaret Murphy and Dr Adrian Brady
Tel: +353 21 230 5040
Patient support group: HHT Ireland: www.hhtireland.org
Israel — Petah Tikva
Schneider Children’s Medical Center of Israel, Petah Tikva
HHT Clinic, Respiratory Division
Rabin Medical Center, Tel Aviv University
14 Kaplan St., Petah Tikva, Israel
Contact: Dr Meir Mei-Zahav, Director
Tel: +972 3 925 3654
Fax: +972 3 925 3308
Patient support group: Meira Heiman, President, Tel: +972 50 641 7187
Italy — Crema, Pavia, Bari
HHT Clinical Team, Ospedale Maggiore, Crema
U.O. di Gastroenterologia ed Endoscopia Digestiva
Largo Dossena 2
26013 Crema, Italy
Contact: Dr Elisabetta Buscarini
Tel: +39 0373 280422 / 280726 (secretary)
Fax: +39 0373 280654
HHT Genetics Team, Università di Pavia, Pavia
Genetica Medica
Via Forlanini 14
27100 Pavia, Italy
Contact: Prof Cesare Danesino
Tel: +39 0382 507737
Fax: +39 0382 525030
University of Bari, Bari
Dipartimento di Medicina Interna e Medicina Pubblica
Università Policlinico
Piazza G. Cesare, 70124 Bari, Italy
Contact: Prof Carlo Sabbà, MD
Tel/Fax: +39 080 547 8708
Website: www.hht-italia.com
Patient support group: Fondazione Italiana HHT: www.hht.it
HHT Onlus: www.hhtonlus.com
Japan — Akita
Akita University School of Health Services, Akita
Department of Physical Therapy
1-1-1 Hondo, Akita 010-8543, Japan
Contact: Dr Takanobu Shioiya
Tel: +81 18 834 111, ext. 6531
Fax: +81 18 884 6500
Patient support group: www.hht.jpn.com
Netherlands — Nieuwegein
St. Antonius Ziekenhuis, Nieuwegein
Koekoekslaan 1
3435 CM Nieuwegein, The Netherlands
Contact: Dr Hans Jurgen Mager
Appointments: Mrs Elly Vermorken, Tel: +31 30 609 2428
Website: www.renduoslerweber.nl
Norway — Oslo
Rikshospitalet University Hospital, Oslo
Oslo, Norway
Contact: Dr Ketil Heimdal
Tel: +47 2307 5593
Fax: +47 2307 5590
Singapore
Singapore General Hospital, Singapore
Outram Road
Singapore 169608
Contact: Kristen Alexa Lee, MD, Consultant, Department of Vascular and Interventional Radiology
Contact: Michelle Kam, Consultant, Department of Respiratory and Critical Care Medicine
Spain — Barcelona
HHT Unit, Hospital Universitari de Bellvitge, Barcelona
C/ Feixa Llarga s/n
L’Hospitalet de Llobregat
08907 Barcelona, Spain
Contact: Dr Riera-Mestre
Tel: +34 932 607 053
Blog: arieramestre.blogspot.com
Patient support group: www.asociacionhht.org or renduosler@asociacion-hht.org
Uruguay — Montevideo
Adult HHT Center, Hospital Maciel, Montevideo
Montevideo, Uruguay
Tel: +598 2915 3000
Contact: Dr Zelika Criscuolo, Tel: +598 93 861 578
Pediatric HHT Center, Hospital Pereira Rossell, Montevideo
Montevideo, Uruguay
Tel: +598 2709 2588
Contact: Dr Rossana Mezzano, Tel: +598 99 603 938
Patient support group: www.hhturuguay.com.uy
Before you contact a center
Clinicians move, clinics reorganize, and phone numbers change. Before you travel, confirm the details on the center’s own website or through the hospital’s main switchboard, and ask whether you need a referral from your own doctor first.
International Centers are listed separately from the North American network while formal certification is still being developed. Many of them have decades of HHT experience and work from the same International HHT Guidelines.
The national patient support groups listed here can help with the practical questions: which clinic is taking new patients, how referrals work in your country, and what to expect at a first visit.
Spot a detail that is out of date, or know of a center we are missing? Please let us know so we can correct it.