Category: Screening and Treatment
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AVMs: Know the Signs
An arteriovenous malformation (AVM) is a tangle where arteries connect straight to veins, skipping the capillaries that normally slow the blood down. Many cause…
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FDA Adds Boxed Warning to Ferric Carboxymaltose Following Petition Led by Cure HHT’s Dr. Scott Olitsky
When something in HHT care isn’t working the way it should, speaking up matters. On August 13, 2026, the US Food and Drug Administration…
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HHT Genetic Testing Labs in North America
A physician or genetic counselor must order all laboratory tests. The laboratories have requested that each patient contact their HHT Center physician, medical geneticist…
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Brain MRI Screening in HHT: Why Support Matters Before and After Results
Cure HHT authors a new response to research on brain MRI screening in HHT and highlights an important truth: screening remains clinically important, but…
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Important FDA Update Regarding Iron Infusions
There’s been a change to the safety label for Injectafer®, an iron infusion often used to treat iron deficiency. The FDA now includes HHT…
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Children’s Hospital of Philadelphia receives funding for pediatric HHT patients
HHT providers at the Children’s Hospital of Philadelphia receive funding from the Department of Pediatrics Chair’s Initiative to increase clinical and research excellence for…