Category: News
Organizational, research, and community announcements. Posts in this category appear automatically on the Latest News page.
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Brain MRI Screening in HHT: Why Support Matters Before and After Results
Cure HHT authors a new response to research on brain MRI screening in HHT and highlights an important truth: screening remains clinically important, but…
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Cure HHT Announces Historic Federal Research Designation for Hereditary Hemorrhagic Telangiectasia
New PRMRP designation creates a dedicated pathway for HHT-focused research through the Department of Defense’s Congressionally Directed Medical Research Programs MONKTON, MD. — May…
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University Hospitals of Leuven Achieves Cure HHT Center of Excellence Designation
Newly recognized international treatment center expands access to expert, coordinated care for people living with HHT MONKTON, MD—Cure HHT is proud to announce that…
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The Research Ripple Effect
For many people living with hereditary hemorrhagic telangiectasia (HHT), research can feel distant. It lives in conference halls, journal pages, grant proposals, and scientific…
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New Evidence, Clearer Urgency: What the Latest HHT Study Shows
A major new study published in Blood shares early findings from CHORUS, the first national U.S. registry created to track the real-world impact of…
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New Federal Momentum for HHT: $3M for Centers and Dedicated Research Eligibility
We are thrilled to share two major wins to celebrate today: the President has signed the FY26 funding agreement which includes $3,000,000 for HHT…
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Cure HHT’s Registry Research Selected for Oral Presentation at American Society of Hematology 2025 Annual Meeting
Presentation will raise critical awareness of HHT among hematologists, expanding understanding and earlier recognition of this underdiagnosed genetic disease MONKTON, Md., October 20, 2025…
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HHT: A Whole System Disease
HHT is often introduced to the world through a single symptom — nosebleeds. But HHT is never only one thing. It is a whole…
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Cure HHT Leads Global Breakthrough in Bleeding Standards, Paving the Way for Future HHT Therapies
A newly published international consensus report—developed under the leadership of Cure HHT, the only nonprofit organization in the world dedicated to funding global research,…
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A History of Pazopanib
There are no FDA-approved therapeutics for the treatment of HHT. Cure HHT sought to change that. In many ways, the history of pazopanib is…