From Stories to Science.

Every person living with HHT has a story. Your gift helps turn those stories into evidence—and evidence into better care.

A story of unexplained nosebleeds. A story of missed diagnoses. A story of anemia, exhaustion, emergency care, pregnancy risks, fear, frustration, resilience, and hope.

For too long, too many of those stories went unheard. Today, because of this community, those stories are becoming something more: data, discovery, clinical insight, research momentum, and better care for people living with hereditary hemorrhagic telangiectasia.

Your year-end contribution turns lived experience into a life-changing gift. And this year, generous donors have stepped forward with a matching gift challenge. Give by December 31, and your gift will be matched, doubling your impact for HHT research, care, and hope.

Behind every number is a person

Someone is waiting for an answer.

A parent wondering what HHT means for their child. A patient trying to understand why bleeding and anemia keep disrupting daily life. A family finally reaching expert care and hearing that there is a plan. The science matters because people are living the questions right now.

What funding makes possible

Your support does not disappear. It builds infrastructure that can be counted.

When you give to Cure HHT, you are not simply making a contribution.

You are helping power the programs, partnerships, and research infrastructure that move HHT care forward.

55+ HHT Centers of Excellence worldwide A network that began with a single Center now connects patients to multidisciplinary HHT expertise around the world.	15 therapies in the HHT pipeline today An increase from three therapies in development between 2018 and 2022.
600 CHORUS participants in a 2026 Blood publication Real-world data from the first 600 participants across 15 HHT Centers is already strengthening the evidence base for HHT.	$3M in FY2026 federal investment for HHT Treatment Centers The same advocacy push also secured HHT-specific eligibility in the federal Peer Reviewed Medical Research Program.

Philanthropy is the Catalyst

Federal funding and industry trials are major wins—but they do not replace private giving. Donor support helps Cure HHT build and maintain the registries, clinical networks, seed research, physician education, advocacy, biobanking, and patient partnerships that make larger investment possible. Cure HHT has invested more than $2.38 million in HHT researchers and reports more than $43.5 million secured through partnerships.

This is how stories become science. And how science becomes change.

Your year-end gift helps fund the next registry enrollment, the next research question, the next trained clinician, the next advocacy win, and the next treatment opportunity. Give by December 31 and your gift can go twice as far.

There’s more than one way to give

Every purchase from the Cure HHT Store helps fund research, awareness, and patient support programs.

Plan a larger gift through a donor-advised fund, a will or living trust, an estate, or life income.

Tell your friends, post on social media, or forward a Cure HHT email to someone who cares.

Every story shared helps raise awareness, reach new families, and bring us closer to a cure.

Information about charitable giving is provided for educational purposes only and should not be considered legal, tax or financial advice. Please consult your professional advisor regarding your individual circumstances.