Dear Cure HHT community, 

If you’ve looked for Cure HHT on Facebook this week and couldn’t find us, we want to explain what happened—and help you reconnect with us. 

Earlier this week, our original public Facebook Page was compromised, and our staff’s administrative access was removed. That Page is now unavailable. We have reported the incident to Meta and are continuing our efforts to recover it. 

In the meantime, we’ve created a new Facebook Page to keep our community connected. 

Follow Cure HHT’s new Facebook Page 

Please follow the new Page and share it with your family, friends, and others in the HHT community. Your help will make it easier for people to find our educational resources, research updates, community stories, and opportunities to get involved. 

Our private Facebook Group was not compromised. Cure HHT staff remain its administrators, and the Group remains private. Current members can continue connecting and sharing there, and individuals looking for support are welcome to request to join. 

Join our private Facebook Group 

Because we do not currently control the original public Page, please be cautious of unexpected messages, links, or requests for money sent from it. You can visit curehht.org directly for trusted information and secure giving. 

We know how much these connections matter. Thank you for your patience and for helping us reach the people who count on Cure HHT. We’ll share updates as we learn more. 

With gratitude, 
The Cure HHT Team