Cure HHT Physician & Patient Conference

October 20-21, 2018

Ann Arbor, Michigan



HHT is a family affair and this is an event that everyone should attend! Cure HHT is thrilled to announce that we will be hosting an HHT conference this fall for HHT patients of all ages and healthcare professionals treating this disease.

This will be the only conference this year to highlight the pediatric component of HHT, featuring a presentation by HHT pediatrician Dr. Andy White, a parent forum and a Kidz Club program.

We know that Michigan is an area that is underserved but has HHT Centers of Excellence in neighboring states. Educating our community of patients, physicians, academic institutions, professional associations, and corporate partners about this disease EMPOWERS us all to create a future that will allow HHT patients to live a normal life, filled with spontaneity and joy.

Our community is built on mutual support and strong relationships. You are an essential component in our mission to find, treat and cure HHT. The Cure HHT Conference is a unique opportunity to forge new bonds and strengthen old ones, and a way for all of us to teach, learn and grow together.

We look forward to seeing you all in Ann Arbor!

  • Patients – Join us and encourage your family members and doctors to attend the conference as well. (There is a volume discount for three or more paid registrations)
  • Physicians – Attend the conference and invite your colleagues to join you
  • Kidz Club - Designed specifically for children (ages 6-12) and teens (ages 13-16); FREE of charge with paying adult or guardian.


PRINT the Program Agenda

PRINT the Kidz Club Agenda


Conference Location

Sheraton Ann Arbor
3200 Boardwalk Street
Ann Arbor, Michigan 48108


Conference Pricing

$175 / $250  Conference Attendee  (early bird* / regular admission)

$75  Medical Student / Medical Resident

Kidz Club (ages 6-16) - FREE of Charge with paying parent or guardian

Conference registration includes priceless time to interact one-on-one with HHT specialists, along with presentation materials and meals served throughout the conference (breakfast, lunch and welcome reception) .

We are offering a volume discount on registrations for more than two paid attendees. Receive $50 off for the third (fourth, fifth, etc.) paid registration, regardless of early bird or regular admission. Conference registration is online only. *Early Bird pricing ends September 30, 2018.


Hotel Reservations


We strongly recommend that you reserve your hotel room NOW if you plan to attend the conference in October.


Cure HHT has reserved a limited number of guest rooms at Sheraton Ann Arbor for a discounted rate of $139/night plus tax. All rates will be offered on a space-available and rate-available basis. Cut-off date for room reservations is 10/4/18.


Reserve Your Hotel Room ONLINE or by phone at 734-996-0600 (mention “HHT” group for discounted rate)

Room TypeRoom Rate*
1-4 Guests in room$139.00 / night*


*Guest room rates are subject to room occupancy tax (federal, state, city, local) which is currently 11% per room per night. All rates will be offered on a space-available and rate-available basis.

Cancellation Policy:  If you cancel between 08/08/2018 and 6:00 PM hotel time on 10/17/2018, there will be no forfeiture amount. If you cancel after 6:00 PM hotel time on 10/17/2018, the forfeiture amount will be a 1 night stay.

Kidz Club

The Kidz Club is a program designed to help children understand and manage HHT. On the road to a cure, we aim to replace fear and uncertainty with confidence and awareness, helping children advocate for themselves in every aspect of their lives.

A great age-appropriate alternative to our adult lectures and workshops, our Kidz Club provides a fun learning environment. Children will have the opportunity to take part in open forum discussions with HHT specialists that will foster better understanding of family history, teach them how to care for themselves and perhaps the most vital lesson of all is they learn that they are not alone!

Fully supervised and designed for children from ages 6 to 16 who have HHT in their family. The youth program is conscious of the impact HHT has on all members of a family and contains activities that address both those who inherited the disease as well as those who did not.

  • Children (ages 6-12); Teens (ages 13-16)
  • FREE of charge with paying parent or guardian
  • Field trip / special activity on Saturday, October 20, 2018 from 12-4pm
  • Program run by Cure HHT and overseen by Lynne Sekarski, pediatric nurse at WashU / St. Louis Children’s Hospital HHT Center

PRINT the Kidz Club Agenda

Conference Scholarship

Conference scholarships help individuals who may not otherwise be able to attend this conference.  Cure HHT will be offering a limited number of scholarships as funds become available. Conference scholarships are fully funded by the generosity of others.

Conference Scholarship awards include conference registration fees only. Scholarships will be awarded on a financial need basis. Conference scholarships are not cash awards and no money or funds are exchanged. All information provided in the conference scholarship application is kept in strict confidence.

To apply for a conference scholarship, simply print, complete and return the Conference Scholarship Application to Nicole Schaefer at [email protected]. DO NOT register online for the conference until you have been notified by Cure HHT. All conference scholarship awardees will receive a special code to be used during online registration.

PRINT Conference Scholarship Application


Invite your doctors and family members

This is a unique opportunity for patients, doctors, and nurses to learn and grow together. Pass this invitation on to someone you think should attend.

Conference Invitation Flyer

Questions ?

Contact Nicole Schaefer at [email protected] or 410-357-9932.

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