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My Dad

Jac Kramar
My dad was not diagnosed with HHT until the end. He was 64. He had nosebleeds all his life, but no one ever mentioned HHT. He got a brain abscess. He had the abscess drained, lost his short-term memory and seemed to be moving forward. Not sure if he had any lung embolisms. The nose bleeds became so bad I guess he couldn't take it & what may happen next. He died by suicide just 18 months before his retirement date.
Dad, I miss you every day, You would have loved it here in Florida with us.

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My dad

Leann DuPont
Love you always!


Rob DuPont
Love you Pop Pop! Fond memories of fishing at the shore, eating WaWa chhesesteaks with Wise potato chips and all those Orange TicTacs! Miss you.

With Sincere Sympathy

Marianne Clancy
So so very sorry for your loss. Too many stories such as your dad's are all too common. Cure HHT is working hard every day to change the future for all families.


Margaret Haggerty

Lynn Wooten
So sorry for your loss. I inherited this from my Mothers side of the family. We have lost so many family members to this disease. I know what you are feeling and again I'm so sorry. You and your family will be in my prayers!?

Melinda Branton
Praying for you..and your family in this tragedy...God Bless You!

Cheryl Wilson
So very sorry for your loss.

jill hodge
Leann and Family, I am so sorry for you all. my dad passed September 2014 from HHT. You and your family are in our thoughts and prayers. Sending love and blessings. Jill

Sorry for your Loss,

Dennis R Parsons
I am so sorry for your loss. I too have HHT type one. I am not sixty one and been battling it for years, it's an arduous disease no doubt. Depression is something I think many HHT people deal with because of low blood counts alone with the constant up and down of it.My heart truly goes out to you and your family for I think many of us have been at the point your father was. He is in the lords hands now and I truly believe that for the ones that suffer so much. Bless you all.

When HHT touches someone close to you, it's natural to want to share their story with others.

HHT is a relentless disease that affects over one million people around the world. Many of those people are robbed of the opportunities that would allow them to lead a full and normal life. Cure HHT is the only organization in the world dedicated solely to research, education, and advocacy that will allow us to find a cure for this disease. You can make a tremendous impact on our mission and honor a loved one by creating a Memorial or Tribute.

Whether your family has managed HHT for generations or you are the first to be diagnosed, everyone has a story to tell. One of the dynamics that keeps our small community so strong is the constant opportunity HHT families have to relate to one another.