Tribute Page

Our mother lives on...

Mary Ellen Brune
Our mother, Mary Ellen Brune, had HHT and unfortunately passed away from complications that were associated with this malady. She was from a small province in eastern France where there is the highest incidence of HHT apparently in Europe and perhaps even the world. My hope is that we all make sure that we are checked on a regular basis and fund research in HHT so that we don't just watch it impact our lives but we impact the final results. We are nowhere where we need to be with HHT so we need to band together to fund research.

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shelly Burnstad
So sorry for your loss. HHT is such an abscure condition. Its a shame more doctor's don't know more. My whole family suffers with HHT. We bleed and many of the family have had to have operations for avms. Again so sorry. And hopeing aswell for treatment and a cure.

Condolences x

Janet Evans
So sorry for your loss due to this awful disease. My family is affected by it too but my husbands life has been improved by tamoxifen. Lets hope and pray that continued research finds better treatments and even a cure so our families don't have to suffer these devastating losses and that more doctors are educated about the disease and how to treat it x

When HHT touches someone close to you, it's natural to want to share their story with others.

HHT is a relentless disease that affects over one million people around the world. Many of those people are robbed of the opportunities that would allow them to lead a full and normal life. Cure HHT is the only organization in the world dedicated solely to research, education, and advocacy that will allow us to find a cure for this disease. You can make a tremendous impact on our mission and honor a loved one by creating a Memorial or Tribute.

Whether your family has managed HHT for generations or you are the first to be diagnosed, everyone has a story to tell. One of the dynamics that keeps our small community so strong is the constant opportunity HHT families have to relate to one another.