Tribute Page

For Peter and Ruth

The Ribicoff Family
I was born in the 1940s, and I knew in elementary school that I had HHT. I was surrounded by it! My maternal grandmother lived with us and had daily nosebleeds. Sometimes they were so severe, she’d come home from the hospital after three to five days with her nose packed with gauze because she was still bleeding.

My mother also had severe nosebleeds and received many transfusions over her life span. In 1961 she was the very first person to have the operation of covering the nasal mucosa with a skin graft. She also had liver AVMs and GI bleeding which, as she got older, became worse. She died at the age of 64.

In my brother’s early 30s, he experienced painful back symptoms and a loss of sensation in his upper thighs. After a couple years tolerating this, he went to many specialists.

A physician saw something in my brother’s spinal column and performed an operation involving a large incision on the side of his spine. It took almost 10 hours to delicately pull out the tangled AVMs. Had my brother not had the operation, he would have died of a spinal aneurysm.

Most of his life, my brother was plagued by one thing after another, which was due mainly to the early damage to his spine. I’d say he was miserable. But he was a stoic - all the way to his death at age 75. He has two children, and one has inherited the gene.

I cannot stress enough that no matter how much you can donate, you will be making a contribution toward research that was long in coming.

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When HHT touches someone close to you, it's natural to want to share their story with others.

HHT is a relentless disease that affects over one million people around the world. Many of those people are robbed of the opportunities that would allow them to lead a full and normal life. Cure HHT is the only organization in the world dedicated solely to research, education, and advocacy that will allow us to find a cure for this disease. You can make a tremendous impact on our mission and honor a loved one by creating a Memorial or Tribute.

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