Tribute Page

In Loving Memory of an Amazing Woman

Mildred Anne Onofrio
My mom, Anne, was born with HHT in 1943 before anyone really knew what it was. She suffered a prenatal stroke because her mother unknowingly suffered from the same disease. Mom fought her whole life with HHT trying to hinder her every move, and was so excited when she finally found doctors who knew what her disease was and could actually help her.

Anne was married to her best friend for 45 years and raised two children, even though she was told the stroke she suffered in the womb would prevent her from having children at all. She lived her life selflessly giving back to the world and was loved by everyone who met her. Her faith and love of life and her family kept her going her entire life.

Everything about this woman's life was nothing short of a miracle, according to so many doctors.

Unfortunately, HHT and a blood clot ultimately ended her life on 4/2/17, less than a month after her 74th birthday. She was very passionate about learning about HHT, educating others (especially her family, as many show signs but have yet to be tested), and funding research on the subject.

Thank you to everyone at the HHT foundation for all you've done and all you continue to do to help people like my mother live full, happy lives despite the odds against them.

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John Quintana
So sorry for ypur loss may God be with you all and bring the peace during this difficult time

Edward Ray
Our thoughts and prayers are with your entire family.

When HHT touches someone close to you, it's natural to want to share their story with others.

HHT is a relentless disease that affects over one million people around the world. Many of those people are robbed of the opportunities that would allow them to lead a full and normal life. Cure HHT is the only organization in the world dedicated solely to research, education, and advocacy that will allow us to find a cure for this disease. You can make a tremendous impact on our mission and honor a loved one by creating a Memorial or Tribute.

Whether your family has managed HHT for generations or you are the first to be diagnosed, everyone has a story to tell. One of the dynamics that keeps our small community so strong is the constant opportunity HHT families have to relate to one another.