Tribute Page

Sadie's gift

Sadie Sherbondy
Sadie is a beautiful 15 year old girl with HHT. She's suffered from seizures and migraines since the age of 5 and we discovered a brain AVM in her right temporal lobe almost at the age of 9. She had a craniotomy at Johns Hopkins to remove her AVM on Feb. 13, 2012. While she still suffers from dizziness and light headedness daily and headaches almost daily, Sadie is a light to those around her. Her seizures are less frequent, but always still a concern.
She recently did a fundraiser to sell "Brain AVM Awareness" t shirts and raised $736.00! She is donating $500 to this site for research on brain AVM's and using the remaining $236 to make care packages for terminally ill children.
Sadie is one of a kind with the biggest, most selfless heart!

Your First Name
Your Last Name
Write a Comment
Title for Comment
Thank you!
Your comment has been received and will be reviewed and posted by the CureHHT team. Thank you very much for your submission!

Please considering donating to CureHHT to help the HHT community, using the donate button above.


There are no Guestbook entries for this story yet.

When HHT touches someone close to you, it's natural to want to share their story with others.

HHT is a relentless disease that affects over one million people around the world. Many of those people are robbed of the opportunities that would allow them to lead a full and normal life. Cure HHT is the only organization in the world dedicated solely to research, education, and advocacy that will allow us to find a cure for this disease. You can make a tremendous impact on our mission and honor a loved one by creating a Memorial or Tribute.

Whether your family has managed HHT for generations or you are the first to be diagnosed, everyone has a story to tell. One of the dynamics that keeps our small community so strong is the constant opportunity HHT families have to relate to one another.