Tribute Page

Missing our kid

José Julio Rodríguez
Our dear Jose died at 13 years old, diagnosed with HHT. Today is almost a month since then, November 21, 2016. He was back from a baseball game, he was the pitcher. He felt bad suddenly and came a surgery and much more until the end. He couldn´t leave the hospital. Our family is still devastated and we can´t believe he isn´t with us anymore. So many things left for doing! So many dreams for accomplishing!! We miss his laugh, his beautiful eyes, his rhythmic dance but he will be in our hearts forever.
Now, his little sister is also diagnosed with HHT. We need to find a treatment for her but there is no enough technology in Cuba for HHT. We can´t afford to lose another kid.
We love and miss Jose, we´ll always do and we´ll do all we can for his little sister, our princess.

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louise Cassidy
Such a handsome boy. Im so sorry for your loss of your beautiful child xx

My deepest sympathy to your family for the loss of Jose. My heart breaks for you. I hope your lovely daughter will find the treatment she needs to live a beautiful life.

Tina Elmore
Our hearts and prayers for the family

Angela Brewster
So sorry for your loss. There are no words.

I'm so very sorry for your loss.

Audrey Smallwood
Deepest sympathies for your tragic loss. Prayers of comfort and healing during your devestating time. Positive thoughts of healing and help for your daughter.

I'm so sorry for your loss. My thoughts and prayers are with you and your family during this difficult time.

My Sympathy

Marianne Clancy
So very sorry for your loss. We are committed to changing this disease so no other lives are lost.

Amanda Travassos
I am so sorry for your loss. May god be with you in this difficult time. I know the pain of losing someone so dear to your heart.

When HHT touches someone close to you, it's natural to want to share their story with others.

HHT is a relentless disease that affects over one million people around the world. Many of those people are robbed of the opportunities that would allow them to lead a full and normal life. Cure HHT is the only organization in the world dedicated solely to research, education, and advocacy that will allow us to find a cure for this disease. You can make a tremendous impact on our mission and honor a loved one by creating a Memorial or Tribute.

Whether your family has managed HHT for generations or you are the first to be diagnosed, everyone has a story to tell. One of the dynamics that keeps our small community so strong is the constant opportunity HHT families have to relate to one another.