This Season We’re Thankful for You

Believe it or not, we’ve come a long way in diagnosing and treating HHT.

The great leaps that we have taken in research over the last 20 years would not have been possible without you, our HHT community. Your involvement and commitment in our organization’s work to fulfill our mission has allowed for HHT research projects to be funded. These projects have improved the lives of HHT patients exponentially over the past two decades. More importantly, our organization knows that our research accomplishments are just the beginning for exploring new opportunities on the research frontier.

And most of all, we are able to focus on fulfilling our current research strategies because of the support from HHT patients, family members and friends from all corners of the globe.

This fall season we are expressing our gratitude to everyone who has helped us so far in our journey to find a cure to HHT.

How? By giving away a one-of-a-kind handmade quilt – a true work of art that would be a perfect addition to any home – created and donated by a very talented friend of this cause.


No donation is necessary to participate in the quilt giveaway! We know that many of you give what you can to this cause, and we are so appreciative that this is a charity you support.

To submit your name without making a donation, please email me at [email protected] by 11:59 PM EST on November 20th. We will draw a name at random by 12 PM EST on November 21st and alert everyone when the winner is confirmed.


We are also trying to raise money this fall for HHT research, and if you are able, we hope you will join us in fueling more resources to our scientists and clinicians. We are already halfway to our $2,000, so donate today! 100% of your donation will go to HHT research, and your donation will automatically enter you into the quilt giveaway. To donate, visit our special quilt giveaway website.

We believe that sharing important goals like this one can be just as important as making a donation. We hope you will share our giveaway and fundraiser with your own friends and family. The more money we raise, the more funding we have for new HHT treatments and therapies.


Thank you again for being a part of our community. We at Cure HHT are proud to work every day to make a cure for this disease not just a possibility, but a reality for all.


Allyson Clancy

Community Engagement Manager, Cure HHT 

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