Social Networking


HHT Facebook Page - The HHT Foundation has created an official Facebook Page where we post current information about research, conferences, grassroots events and awareness campaign activities. Unlike your profile, Facebook Pages are visible to everyone on the internet by default. You, and every person on Facebook, can connect with these Pages by becoming a fan and then receive their updates in your News Feed and interact with them.

LIKE US on Facebook and get connected to what is going on in the HHT Community!

HHT Facebook Group - A place for small group communication and for people to share their common interests and express their opinion. Groups allow people to come together around a common cause, issue or activity to organize, express objectives, discuss issues, post photos and share related content. Facebook Groups are set up by individuals who are interested in having conversations about a specific topic, like HHT. Several Facebook Groups have been created for HHT, here are just a few, none of which are endorsed by the HHT Foundation specifically.

HHT International

Raising Children with HHT

Hereditary Hemorrhagic Telangiectasia (HHT) Awareness



Twitter is a real-time information network that connects you to the latest stories, ideas, opinions and news about what you find interesting. The HHT Foundation Tweets about the latest medical treatments, conference, clinical trial or grassroot event. If there is something going on in the HHT Community, the HHT Foundation is Tweeting about it. You can see photos, videos and conversations in our Tweets - get the whole story at a glance, and all in one place. With just a Tweet, millions of people can learn about or show their support for HHT initiatives that might have otherwise gone unnoticed.

FOLLOW US on Twitter and everyone who follows you will become aware of HHT.



It is important to note that you need to be careful dispensing or receiving medical information on Facebook or Twitter. The information contained on these sites should not replace necessary consultations with qualified health care professionals.