Our Stories


We believe that by sharing your story, you may help someone who may be going through a similar situation.

If you are interested in submitting your story please contact Cure HHT at 410-357-9932 or [email protected].


Anonymous Mom - A Family's Secret Revealed

Anthony Anzell - Always Have Hope

Sarah Beckwith - Migraines - A Warning Sign

Jennifer Beckwith - Why I Chose IVF

Marianne Clancy - Clues Overlooked and Lives Lost

Eric Cornell, PhD - HHT and the Foundation

Coxall Family - The Power of Awareness

Delaine Elle - Pain Persisted...So Did I

Misa Leonessa Garavaglia - Never Give Up: One Woman's Motto on Life

Mary Geake - Warning Signs of Deeper Symptoms

A'Lisa Hamilton - It's Not Just a Family Nosebleed

Lynsey Jayes - A Mom and an Advocate

Ron Johnson - A Life Changing Event

Katie Jones - My Great-Grandfather's Death Certificate Led to My HHT Diagnosis

Connor McDonald Kamm - HHT Patient Wins at National Track Championship

Tom Kurtz - A Tribute to HHT Member and Volunteer

Jim LeDrew - It Takes a Simple Test

Chelsea Lewis - Safe Harbor, My Story with HHT

Tami Lyvers - Denial and Acceptance of HHT

McMahon Family - Making a Difference Three Generations at a Time

Nissan Family - Hope Holds the Cure

Allan and Gwen Olitsky - Couple Seeking Answers Finds Hope

Hayleigh Pahnke - It's Asthma. It's Pneumonia. No, It's HHT.

Neeta Pai - A Journey to Healing

Renee Palmer - Superheroes Come in All Sizes

Sara Palmer - My Not-So-Scary Lung AVM Embolization Experience

Park Family - To Dream Despite HHT

Bob Parson - The Importance of Keeping a Medical History

Rice Family - Faith, Family and HHT

Anita Runck - An Infection Changed My Life Forever

Eric Scheele - Why I Give

Ashley Scherkenbach - A Stroke of Luck...Sort of

Savanah Schott - Starting the HHT Conversation

Keith Scouten - The Power of Social Networks

Arlene Williams - Advocacy, Education, Fundraising: The Power of the Written Word

What About The Children - A Powerful Message from Heartbroken Mothers

JJ Zazueta - HHT is Real, You are Not Crazy