Insurance Resources


HHT ICD-10 Insurance Code - I78.0   (ICD-9 code 448.0)


State Insurance Regulator Roster - If you have a question or complaint about your insurance company's policies, contact the company before you contact your state insurance regulator. The state regulator offices enforce laws and regulations for each type of insurance. Many of these offices can also provide you with information to help you make informed insurance-buying decisions.

How to Appeal a Health Insurance Denial (general) - Simple instructions to follow if your health insurance claim has been denied.

SSI and SSDI  - Learn the difference between two federal government assistance programs, Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) and the specific sections of the SSA official listing that includes organs impacted by HHT. Links are also available for SSDI application and and SSA Disability Starter Kit. - A Federal Government website management by the U.S. Centers for Medicare and Medicaid Services. This website allows you to learn about all of your health insurance options under the Affordable Care Act and so much more.

Kaiser Family Foundation has developed a Guide to the Medicaid Appeals Process which provides case studies, flow charts, timelines, etc. There is a specific appeals process for each type of health insurance including private, public, federal, military, and Medicaid. This guide describes Medicaid's appeals system, including the fair hearing process and the process required for Medicaid managed care organizations.

Medicare Rights Center - The Medicare Rights Center works to ensure access to affordable health care for older adults and people with disabilities through counseling, educational programs and public policy initiatives.

Social Security Administration - Official website; faces and facts of disability.

Social Security and Disability Resource Center - The SSDRC is published, edited, and maintained by Tim Moore, a former disability claims examiner for the Social Security Administration's disability determination services (DDS) agency in the state of North Carolina. Tim Moore has taken and passed the written examination that is administered by the Social Security Administration and authorized under Public Law No. 111-142, "The Social Security Disability Applicants' Access to Professional Representation Act of 2010". The goal of this site is to provide information about how the federal government's disability programs work.

U.S. Department of Health and Human Services - The Department of Health and Human Services (HHS) is the United States government’s principal agency for protecting the health of all Americans and providing essential human services, especially for those who are least able to help themselves. HHS’ Medicare program is the nation’s largest health insurer, handling more than 1 billion claims per year. Medicare and Medicaid together provide health care insurance for one in four Americans. HHS works closely with state and local governments, and many HHS-funded services are provided at the local level by state or county agencies, or through private sector grantees.

Pre-Existing Condition Insurance Plan (PCIP) - The official U.S. government site for PCIP; a division of the HHS. Determine your eligibility, costs, and coverage of these state and federally run programs.

If you are uninsured, you may be eligible for other coverage programs through Medicaid and the Children’s Health Insurance Program (CHIP). Many parents may also be eligible. If you or someone in your family needs health coverage, you should apply. To find information about Medicaid and CHIP health coverage programs in your state, go to Programs in Your State or call 877-Kids-Now (877-543-7669).