North American Treatment Centers

 

Cure HHT currently partners with over 25 HHT Treatment Centers of Excellence (COE) in North America. Although Cure HHT and the Cure HHT COE are completely separate entities, we have established a collaborative relationship that encourages advancements in the diagnosis, treatment and management of HHT that benefits all individuals affected by this disorder.  COE certified after January 2017 have been certified by Cure HHT to meet the 2017 Criteria for a North American Cure HHT Center of Excellence.  COE certified before January 2017 have been certified by Cure HHT to meet the 2008 Criteria for a North American Cure HHT Center of Excellence and will undergo recertification between 2018 and 2022.

 

UNITED STATES

 

Arkansas

UNIVERSITY OF ARKANSAS for MEDICAL SCIENCES HHT CENTER (2012)

Division of Interventional Radiology
4301 W. Markham Street, #556
Little Rock, AR  72205-7199

UAMS HHT Website

Contact:   Lindsey Wyerick, RN
Tel:   501-686-6918

Dr. Mollie Meek, Director

Media Publications
UAMS Health

California

UNIVERSITY OF CALIFORNIA at LOS ANGELES HHT CENTER (2010)

UCLA Radiology Consultation Center
100 Medical Plaza, Suite 100
Los Angeles, CA  90095

UCLA HHT Website

Contact:  HHT Center Administrator / Samantha Tangchaiburana, Nurse Practitioner
Tel:   310-481-7545

Dr. Justin McWilliams, Co-Director
Dr. Gary Duckwiler, Co-Director

UNIVERSITY OF CALIFORNIA at SAN DIEGO HHT CENTER (2008)

UCSD Medical Center
200 West Arbor Dr. 8756
San Diego, CA 92103

Contact: Julie Fisher, HHT Clinic Coordinator
Tel: 619-471-0320

Dr. Thomas Kinney, Director

UNIVERSITY OF CALIFORNIA at SAN FRANCISCO HHT CENTER (2014)

Adult Clinic
185 Berry Street, Suite 180, Lobby 6
San Francisco, CA 94107-0946

Pediatric Clinic
UCSF Ron Conway Family Gateway Medial Building, 5th Floor, Reception area 5A
UCSF Medical Center at Mission Bay
1825 Fourth Street
San Francisco, CA 94158

UCSF HHT Website

Contact: Anjuli Figueira, Patient Care Coordinator
Tel: 415-353-8867
Fax: 415-353-4503

Dr. Miles Conrad, Co-Director
Dr. Steven Hetts, Co-Director

Colorado

UNIVERSITY OF COLORADO HOSPITAL (2013)

12605 E. 16th Ave.
Aurora, CO 80045

UCH Website

Contact: HHT Patient Access Representative
Tel: 720-848-5182

Dr. Brian Graham, Co-Director
Dr. Paul Rochon, Co-Director

Media Publications

Connecticut

YALE UNIVERSITY HHT CENTER (2008)

Department of Diagnostic Radiology
P.O. Box 208042
789 Howard Avenue, Room CB225
New Haven, CT 06520

Yale HHT Website

Contact: Kate Henderson, MS, CGC
Tel: 203-737-1427
Fax: 203-737-1077

Jeffrey Pollak, MD; Medical Director
Katharine Henderson, MS, CGC; Co-Director
Robert I. White, Jr., MD; Medical Director Emeritus

Georgia

AUGUSTA UNIVERSITY HHT CENTER (2008)

(Formerly Georgia Regents University)
Division of Pulmonary Medicine
1120 15th St. BBR 5513
Augusta, GA 30912-3135

Augusta HHT Website

Contact: Janie Sims, RN
Tel: 706-721-0470
Fax: 706-446-2815

Dr. James Gossage, Director

Illinois

UNIVERSITY OF CHICAGO MEDICAL CENTER HHT CENTER (2015)

5841 S. Maryland Avenue, J325
Chicago, IL 60637

Website

New Patient Referrals: 773-702-2123
Emergency Referrals: 855-834-4782
Clinic Coordinator: Kristina Piedad, RN, BSN  773-834-5210

Dr. Issam Awad, Director (Adult patients)
Dr. Seon-Kyu Lee, Co-Director
Dr. Umesh Dyamenahalli, Associate Medical Director (Pediatric patients)

Media Publications

Maryland

JOHNS HOPKINS HHT CENTER (2009)

Radiology and Radiological Science
1800 Orleans St./ Bloomberg 3287
Baltimore, MD 21287-4010

Johns Hopkins HHT Website

Tel: 410-550-LUNG (5864)  follow prompts for either new patients (2) or current patients (3) then HHT (7)  

*As of Sept 1, 2017, Hopkins HHT Center is in staffing transition. If you have any trouble scheduling appointments, please contact Cure HHT at 410-357-9932.

Dr. Christian Merlo, Co-Director
Dr. Sally Mitchell, Co-Director

Massachusetts 

MASSACHUSETTS GENERAL HOSPITAL  (MGH) HHT CENTER (2016)

HHT center includes affiliations with Massachusetts General Hospital, MassGeneral Hospital for Children, and Massachusetts Eye & Ear Infirmary

Pulmonary Hypertension Clinic
55 Fruit Street, Bulfinch 148
Boston, MA  02114

Mass General HHT Website

Contact:  Pulmonary Hypertension Clinic
Tel: 617-724-3705

Dr. Josanna Rodriguez-Lopez, Co-Director
Dr. Ray Liu, Co-Director

Minnesota

MAYO CLINIC HHT CENTER (2014)

Division of Pulmonary & Critical Care Medicine
200 1st Street S.W.
Rochester, MN 55905

Mayo Clinic HHT Website

Contact: Appointment Office
Tel: 507-284-9711

Dr. Vivek Iyer, Director

Missouri

WASHINGTON UNIVERSITY HHT CENTER (2008)

660 South Euclid Avenue #8052
St. Louis, MO 63110-1093

Contact: Dr. Murali Chakinala; Co-director  (Adults)
Tel: 877-888-5864 or 314-454-8917

Contact: Dr. Andy White; Co-director  (Pediatrics)
Tel: 314-454-2479

Contact: Dr. Jay Piccirillo (ENT)
Tel: 314-362-8641

WashU Area HOTELS

Media Publications

New York

NEWYORK-PRESBYTERIAN / COLUMBIA UNIVERSITY IRVING MEDICAL CENTER HHT CENTER (2016)

177 Fort Washington Avenue
MBH 4-100
New York, NY 10032

Contact: Helen Pena-Chacon (adults)
Tel: 212-305-7094

Contact: Dr. Emilio Arteaga-Solis (pediatrics)
Tel: 212-305-5122

Dr. Sophie Chheang, Co-Director
Dr. David Sperling, Co-Director

North Carolina

UNIVERSITY OF NORTH CAROLINA at CHAPEL HILL HHT CENTER (2011)

UNC at Chapel Hill
Department of Hematology
6340 Quadrangle Drive
Suite 50
Chapel Hill, NC  27517

UNC HHT Website

Contact:   Karen Smith, RN
Tel:   919-966-2790

Dr. Raj Kasthuri, Director

Ohio

CINCINNATI HHT CENTER (2016)

3333 Burnet Ave.
Cincinnati, OH  44195

Cincinnati HHT Website

Contact:  Melissa Schrinner, Patient Coordinator
Tel:  513-636-2084

Dr. Adrienne Hammill, Director
Dr. Manish Patel, Associate Director

CLEVELAND CLINIC HHT CENTER (2013)

9500 Euclid Avenue
Cleveland, OH  44195

Contact:  Kasi Timmerman
Tel:  216-445-3636
Fax: 216-636-2054

Dr. Joseph Parambil, Director

Media Publications
Respiratory Exchange

Oregon

OREGON HEALTH & SCIENCE UNIVERSITY HHT CENTER (2008)

OHSU L-605
3181 S.W. Sam Jackson Park Rd.
Portland, OR 97239-3011

OHSU HHT Website

Contact: Tami Karjalainen
Tel: 503-418-6725

Dr. Mark Chesnutt, Director

Pennsylvania

UNIVERSITY OF PENNSYLVANIA HHT CENTER (2008)

Division of Medical Genetic
3400 Spruce Street, 1115 Penn Tower
Philadelphia, PA 19104-4283

Contact: Kara Walsh
Tel: 215-662-4740
Fax: 215-614-0298

Dr. Reed Pyeritz, Co-Director
Dr. Scott Trerotola, Co-Director

UPenn Area HOTELS

UPMC and THE UNIVERSITY OF PITTSBURGH HHT CENTER (2015)

UPMC Presbyterian - Shadyside
200 Lothrop Street
Pittsburgh, PA  15213

UPMC HHT Website

Contact:  General Call Center (request a referral to the UPMC HHT Center)
Tel: 412-648-6161

Dr. Christopher Faber, Director

Patient Story Video

Texas

UNIVERSITY OF TEXAS - SOUTHWESTERN HHT CENTER (2014)

University of Texas Southwestern Medical School
5939 Harry Hines Boulevard
POB 2, Suite 630
Dallas, TX  75390-9198

UTSW HHT Website

Contact: Randy Levins
Tel: 214-645-2100

Dr. John Battaile, Director

UTSW Guest and Patient Services: 214-645-2393 to obtain hotel and amenity arrangements (i.e., wheelchairs, escorts, and other concierge services

UTSW Area HOTELS

Utah

UNIVERSITY OF UTAH MEDICAL CENTER HHT CENTER (2008)

30 North 1900 East
Room 4A100
Salt Lake City, UT 84132

Utah HHT Website

Contact:  Cherisa Chappell, HHT Patient Care Coordinator
Tel: 801-581-8188
Fax: 801-587-5872
Email: [email protected]

Jamie McDonald, MS, LGC, Co-Director
Dr. Kevin Whitehead, Co-Director

University of Utah Lodging

Utah Media Publication

Wisconsin

FROEDTERT & MEDICAL COLLEGE OF WISCONSIN HHT CENTER (2012)

9200 West Wisconsin Avenue
Milwaukee, WI  53226

Froedtert HHT Website

Contact:  Julie Meddaugh
Tel:  414.805.3666  or  1.800.DOCTORS
Fax: 414-805-3905

Dr. Jake Decker, Director

 

CANADA

 

TORONTO HHT CENTRE (2008)

St. Michael's Hospital
30 Bond St., Room 6049
Toronto, ON M5B 1W8
CANADA

University of Toronto HHT Website

Adult HHT & Pulmonary AVM Center
Contact: Rose Pantalone for Dr. Marie Faughnan, Director
Tel: 416-864-6060 ext. 2407

Pediatric HHT Clinic
Director: Dr. Felix Ratjen, Pediatric Respirologist
Hospital for Sick Children
Tel: 416-813-5837 (contact: Susan Carpenter)

HHT Genetics Team
The Hospital for Sick Children
Division of Clinical & Metabollic Genetics
555 University Ave.
Toronto, ON M5G1X8
Canada

Contact: Ms. Regan Klatt, MS, CGC; Vice-Director
Tel: 416-813-6389
Fax: 416-813-5345

Brain AVM Clinic
University Health Network
Dr. Karel terBrugge, Interventional Neuroradiologist
Tel: 416-603-5266

Brain AVM Study Clinic Website

Brain AVM Study Support Group

EDMONTON HHT CENTRE (2008)

University of Alberta
3-105C Clinical Sciences Building
Edmonton, AB T6G 2G3
CANADA

Contact
Dr. Dilini Vethanayagam, Co-Director
Dr. Richard Owen, Co-Director

Tel: 780-492-5879
Fax: 780-492-6739

MONTREAL HHT CENTRE (2008)

CHUM, Hotel Dieu
3840 St - Urbain
Montreal, QC H2W 1T8
CANADA

Contact: Anouk Gackowski for Dr. Andreanne Gauthier, Director
Tel: 514-890-8000 local 15672
Fax: 514-412-7123

WINNIPEG HHT CENTRE (2016)

Grace Hospital AMC
300 Booth Drive
Winnipeg, MB  R3J 3M7
CANADA

Contact: Dr. Els Maria De Gussem, Director
Tel: 204-837-0790
Fax: 204-837-0791