A Hereditary Hemorrhagic Telangiectasia (HHT) Treatment Center is a medical team that possesses the personnel, expertise, commitment, and resources to optimally provide comprehensive evaluation, treatment, and education to patients and families with HHT. The standard of care must meet or exceed the International HHT Guidelines, recognized by Cure HHT.
HHT centers proactively manage the care of patients with HHT with an integrated team of experts, knowledgeable about HHT. A full-time nurse will work closely with the specialists and a coordinator will be on-site to ensure proper follow-up and coordination of patients care throughout the center.
Each HHT center combine strengths of each specialty to treat the unique symptoms of HHT. You will have access to physicians who specialize in all aspects of HHT.
Cure HHT strongly encourages HHT centers to:
- Educate patients, families, and health care providers about HHT.
- Interact with the non-COE health care providers of HHT patients.
- Engage in HHT research and publish results in medical journals and publications.
- Participate in Cure HHT activities.