WEBINAR: Nociones básicas y generales sobre HHT (en español) (Recorded)
Cure HHT se enorgullece de presentar el primer seminario web en ESPAÑOL. El Dr. Marcelo Serra, especialista en Medicina Interna y Director de la Unidad de HHT d…
MoreVirtual Meet-Up: HHT & COVID – 1 Year Later (Recorded)
A rare opportunity to receive factual information surrounding COVID-19 and HHT from leading HHT experts who have been on the frontlines since the very beginning…
MoreBrain (Cerebral) Vascular Malformations & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
MoreNosebleed (Epistaxis) & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
MoreGastrointestinal (GI) Bleeding & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
MoreImaging & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
MoreLiver Vascular Malformations & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
MoreAnemia, Iron Deficiency & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
MoreDiagnosis of HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
MoreLung (Pulmonary) Arteriovenous Malformations & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
MoreScreening for pulmonary and brain vascular malformations is the North American standard of care for patients with hereditary hemorrhagic telangiectasia (HHT): A survey of HHT Centers of Excellence
Vascular Medicine. Authors: Alexandra Kilian, Marianne S. Clancy, Scott Olitsky, James R. Gossage and Marie E. Faughnan. This article is available for public us…
MoreChildren & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
MoreWomen’s Health, Pregnancy & HHT
Companion factsheet to the My HHT Care Checklists patient resources, and based upon updates from the Second International HHT Guidelines published in the Annals…
MorePatient Symptom & Care Checklists
Download and distribute “My HHT Care Checklists” to patients to complete and return to you, including: HHT Care, HHT Diagnosis, Anemia, Brain VMs, Pediatric, Te…
MoreMore Than a Nosebleed: HHT
Hereditary Hemorrhagic Telangiectasia (HHT) is a genetic condition affecting up to 1.4 million people worldwide. HHT is treatable, but no cure is yet available….
MoreEfficacy of Timolol in a Novel Intranasal Thermosensitive Gel for HHT–Associated Epistaxis: A Randomized Clinical Trial
JAMA Otolaryngology Head & Neck Surgery. Authors: Andrew M. Peterson, MSCI, Jake J. Lee, MD, MSCI, DorinaKallogjeri, MD, MPH, et al. This article can be pur…
MoreMy Teen Years HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Nosebleed Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Liver VM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreHHT International Clinical Guidelines (2020)
Published by the Annals of Internal Medicine in 2020, the “Second International Guidelines for the Diagnosis and Management of HHT” is a comprehensive document…
MoreMy HHT GI Bleeding Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Diagnosis Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Brain VM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Pulmonary AVM Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy Child’s HHT Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Pregnancy & Delivery Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreMy HHT Anemia and Iron Deficiency Care Checklist
The “My HHT” checklists are a series of checklists by topic area for people with HHT to self-manage their care and bring to their doctor. These checklists are b…
MoreAsk The Doctor: Tackling Anemia and Iron Deficiency (Recorded)
Feeling tired? Weak? Short of Breath? These symptoms could be related to HHT induced anemia and iron deficiency. With anemia affecting 50% of people diagnosed w…
MoreVirtual Meet-up: Ask the Doctor – Nosebleeds 101 (Recorded)
Watch our “Ask the Doctor” series with Dr. Scott Olitsky, Cure HHT Chief Medical Officer, and HHT patient, Chelsea McBride as they discuss EVERYTHING nosebleed…
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